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- Mild Cognitive Impairment
Mild cognitive impairment (MCI) is a condition in which people have memory or other thinking problems that do not normally disrupt activities of daily living. MCI Not necessarily "Dementia" in the strictest sense of the word, but a condition that commonly leads to Dementia, and therefore there should be a high level of concern. "Mild cognitive impairment (MCI) is a condition in which people have memory or other thinking problems greater than normal for their age and education, but their symptoms are not as severe as those seen in people with Alzheimer’s disease. More older people with MCI, compared with those without MCI, go on to develop Alzheimer’s. Studies are underway to learn why some people with MCI progress to Alzheimer’s and others do not. The problems associated with MCI may also be caused by certain medications, cerebrovascular disease (which affects blood vessels that supply the brain), and other factors. Some of the problems brought on by these conditions can be managed or reversed. The type of MCI with memory loss as the main symptom is called amnestic MCI. In another type, non-amnestic MCI, the main symptom is an impaired thinking skill other than memory loss, such as trouble planning and organizing or poor judgment." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- About Us | Dementia Society of America
A leading volunteer-driven organization raising nationwide awareness for all causes of Dementia, including Alzheimer's (AD), Vascular Dementia, and more. Who Are We? Our all-volunteer Board of Directors and Advisory Council members use the power of technology and virtual offices to help us make a real-world difference. Dementia Society of America® proudly serves individuals and families across the country who are facing the challenges of over two hundred Dementia-related disorders. Through vital resources, educational outreach, groundbreaking research, and critical programs for caregivers and those diagnosed, we strive to bring hope, understanding, and meaningful support to every community. The Dementia Society encourages life-enrichment achievements through its Ginny Gives® Awards Program, which focuses on music and singing, dance and movement, the visual arts, touch, and sensory stimulation. The Dementia CARER®, Dementia SMART®, and Dementia QUEST® Programs recognize those who serve the Dementia community through meaningful care, innovation, and research, respectively. Lastly, the Society often provides the first significant infusion of funding for certain early-stage seed investments in advanced research centered on the causes of and interventions for Dementia, as well as overall brain health-related science. See the Scientific Review Committee members here . LEADERSHIP, ADVISORY COUNCIL, ADVOCATES & SUPPORT TEAM Members Kevin Jameson Salaried CEO | Volunteer Board Member & Chairman | View Bio → Jeff Moyers CFP Volunteer | Board Member & Treasurer | View Bio → Michael Fossel MD PhD Volunteer | Advisory Council, Medical | View Bio → Lauren Schwabish MS CCC-SLP Volunteer, Advisory Council, Speech Pathology | View Bio → Arun Rao MD Volunteer | Advisory Council, Geriatric Medicine | View Bio → Ann Redfield RN MSN Volunteer | Programs | Executive Vice President Emeritus | View Bio → Lilly Roth Volunteer | Board Member & Secretary | View Bio → Michael Trayford DACNB Volunteer | Advisory Council, Medical | View Bio → Minjung Shim PhD BC-BMT Volunteer | Advisory Council, Movement Therapy | View Bio → Kimberly Dolan MT-BC Volunteer | Advisory Council, Music Therapy | View Bio → Blaine Greenfield Volunteer | Board Member, Sr VP & Compliance Officer | View Bio → Vanessa Adams Volunteer | Board Member & Caregiver Advocate | View Bio → Rachel Wiley MS OTR L CDP Volunteer | Advisory Council, Occupational Therapy | View Bio → Samir Patel MD Volunteer | Advisory Council, Geriatric Psychiatry | View Bio → Gary Kozick LCSW Volunteer | Advisory Council - Care Management | View Bio → SUPPORT TEAM Carly McElroy Employee | Operations | View Bio → Jeannine Forrest PhD RN Independent Contractor | Care Coach | View Bio → Robin Kaufold Employee | Programs | View Bio → Tami Anastasia MA Independent Contractor | Care Coach | View Bio → Jean Whaley PhD Volunteer | Programs | View Bio → We thank our past Volunteer Board & Advisory Council Members... Barbara Marte Nathan Schulhof Jeff Dershin Eric Hopkins Tony Martin Gary Howard NREMT Sandra DeHaven Natalie Kaye Hayley Francis Cann BMT H Branch Coslett MD Thomas Atkins Partial list of our Partners and Sponsors; please click here . Partial list of our Press Releases; please click here . Access our completed 2024 IRS Form W-9 (version) here . Access our IRS determination letter; please click here . To access our sales tax exemption certificate, please click here . Download our current bylaws here . Our NAICS Code #813212: Voluntary Health Organization IRS 990s: 2013 ; 2014 ; 2015 ; 2016 ; 2017 ; 2018 ; 2019 ; 2020 ; 2021 ; 2022; 2023; 2024 ; 2025 ; 2026; 2027; 2028; 2029; 2030
- Dementia Society of America® | Definitions
Where does one get the truth about Alzheimer’s Disease and other forms of Dementia? Right here. We have collected definitions we believe will be helpful to you. Definitions Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Anchor 1 Where does one get the truth about Alzheimer’s Disease and other forms of Dementia? Right here. We have collected definitions we believe will be helpful to you. We also offer a variety of presentations and programs to help people living with these conditions and their families and caregivers. You don’t have to make this journey alone. We can help. Access additional Dementia resources here. 1:40 Minutes 4:00 Minutes DEFINITIONS A broad factual definition of Dementia from the U.S. Government: "Dementia is not a specific disease. It is a descriptive term for a collection of symptoms that can be caused by a number of disorders that affect the brain. People with dementia have significantly impaired intellectual functioning that interferes with normal activities and relationships. They also lose their ability to solve problems and maintain emotional control, and they may experience personality changes and behavioral problems, such as agitation, delusions, and hallucinations. While memory loss is a common symptom of dementia, memory loss by itself does not mean that a person has dementia. Doctors diagnose dementia only if two or more brain functions - such as memory and language skills -- are significantly impaired without loss of consciousness. Some of the diseases that can cause symptoms of dementia are Alzheimer’s disease (AD), vascular dementia, Lewy body dementia, frontotemporal dementia, Huntington’s disease, and Creutzfeldt-Jakob disease. Doctors have identified other conditions that can cause dementia or dementia-like symptoms including reactions to medications, metabolic problems and endocrine abnormalities, nutritional deficiencies, infections, poisoning, brain tumors, anoxia, or hypoxia (conditions in which the brain’s oxygen supply is either reduced or cut off entirely), and heart and lung problems. Although it is common in very elderly individuals, dementia is not a normal part of the aging process"* Moreover, recent studies have found that newer brain scans may point to other causes of Dementia in approximately one-third of presumed AD cases, thereby helping avoid an Alzheimer’s disease misdiagnosis, which may lead to better treatment and care.** A fundamental concept to grasp is that the symptoms of Dementia often go beyond memory loss. They can include significant shifts in mood, more falls, disturbed gait (how we walk), and more. In addition, hallucinations, delusions, and paranoia are not uncommon. *Sources- 2015, United States National Institutes of Health: National Institute of Neurological Disorders and Stroke. Additional Sources- Read updated information from NIH; click here . Mayo Clinic has an excellent brief definition; click here . The National Institute on Aging maintains an excellent site; click here . World Health Organization, click here . **Source- 2019, click here. Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Education | Click Here
- Wernicke Encephalopathy/Korsakoff Syndrome
Wernicke encephalopathy and Korsakoff syndrome are different conditions. Both are due to brain damage caused by a lack of vitamin B1. To learn more, contact us. WKS "Wernicke encephalopathy and Korsakoff syndrome are different conditions. Both are due to brain damage caused by a lack of vitamin B1. Lack of vitamin B1 is common in people with alcoholism. It is also common in persons whose bodies do not absorb food properly, as sometimes occurs with a chronic illness or after obesity surgery. Korsakoff syndrome, or Korsakoff psychosis, tends to develop as Wernicke symptoms go away . Wernicke encephalopathy causes brain damage in lower parts of the brain called the thalamus and hypothalamus. Korsakoff psychosis results from permanent damage to areas of the brain involved with memory. Symptoms of Wernicke encephalopathy [Dementia] include: Confusion and loss of mental activity that can progress to coma and death ; loss of muscle coordination that can cause leg tremor; vision changes such as abnormal eye movements; double vision; eyelid drooping; alcohol withdrawal; inability to form new memories; loss of memory can be severe; making up stories; seeing or hearing things that are not really there. Other conditions that may cause vitamin B1 deficiency include: AIDS, cancers that have spread throughout the body, extreme nausea and vomiting during pregnancy, heart failure, long periods of intravenous (IV) therapy without receiving thiamine supplements, long-term dialysis, very high thyroid hormone levels." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Monthly Newsletter Email | Dementia Society of America
Sign up for our monthly Dementia & Brain Health eNews. Please click below to join our once-a-month email newsletter on Dementia & Brain Health matters. Thank you. Subscribe to eNews Click here to see our eNews archive.
- Dementia Unplugged | Dementia Society of America
Explore Dementia Unplugged, an initiative by the Dementia Society of America. Enhance understanding and support for dementia, offering resources and insights. Dementia Unplugged Join our host, Tami, in a lively and informative national Zoom call most Mondays at 7 PM ET. This Dementia Unplugged program, Ask The Expert™ , is appropriate for all care partners and all types and stages of Dementia, as well as specific individuals (those living with MCI or very early-stage Dementia). You'll be able to ask basic questions, get real-world answers, and take the next best step(s) in your journey. Not a "support group" exactly, and not limited to just one type of Dementia. Instead, this is a supportive, helpful conversation around the fundamental challenges and opportunities of coping with all of the symptoms of Dementia. "Ask The Expert" aims to maximize the chance for positive movement forward as a caregiver and self-care. CLICK HERE TO REGISTER FOR ASK THE EXPERT™ Download a handout for Ask The Expert. Please click here . More Supportive Programs... Iowa State University's Powerful Tools for Caregivers: a 6-week worksho p on stress management. Please click here . Support groups on Facebook? Please click here . Are you looking for our other Dementia Unplugged™ programs? Click on the link(s) below to open up the specific playlists on our YouTube channel. ARTFul Insights™ Dementia Foundations™ Care Conversations™
- Our Programs | Dementia Society of America®
Our dementia education programs support those living with dementia and their caregivers. Contact us today to access resources and assistance. Programs Our Dementia education and information programs follow our mission. Those that we serve are very much in need and may be... Living with a form of Dementia, or Acting as caregivers / care partners; Isolated from friends and family; Have spent down their life savings; Now be on medical subsidies; As you can see it is vital to share Dementia information to address the myriad of issues faced every day. One of our larger efforts addresses the biggest need- tackling taboos, stigmas, fears of the unknown, and a general lack of knowledge about the basics of Dementia; all of which may hold back individuals, families, and our communities, from improving the lives of those living with Dementia. We invite your questions. Please contact us at 1-800-DEMENTIA (1-800-336-3684) or talk to us on social media. Discover More | Click Below Educate Provide Recognize People living with Dementia may long to hear the music they enjoy; yearn to express, however best they can, their feelings through the powerful medium of art; feel the touch of a warm loving hand, or watch (and join in if able) graceful dancers as they sway and swing to the beat. Dementia Society of America (DSA) strives to provide the highest quality programs, performers, and professionals. Our programs are underwritten through the concern and generosity of supporters like you, from across the country. It's important to recognize the efforts of others to enhance the lives of those living with Dementia and/or their caregivers. Maybe it's the occasional concert that residents throw together for the enjoyment of all. Maybe it's an inventor or upstart entrepreneur who creates the next "app" or safety system, that will connect and protect those affected. We want to make a difference, today! If you've read this far, you probably do too. Why not join with us ?
- Vascular Dementia
Vascular Dementia is caused by a series of small strokes and is the second most common cause of dementia after Alzheimer's in people 65+. To learn more. Vascular DONATE "Multi-infarct Dementia [also commonly referred to as 'Vascular Dementia'] is caused by a series of small strokes. Multi-infarct Dementia (MID) is the second most common cause of dementia after Alzheimer's disease in people over age 65. MID usually affects people between the ages of 55 and 75. More men than women have MID. A stroke is an interruption in or blockage of the blood supply to any part of the brain . A stroke is also called an infarct. Multi-infarct means that more than one area in the brain has been injured due to a lack of blood. The brain cannot get oxygen if blood flow is stopped for longer than a few seconds. Brain cells can die, causing permanent damage. There may be no stroke symptoms when these strokes affect a small area . These are called silent strokes. Over time, as more areas of the brain are damaged, the symptoms of MID appear. Not all strokes are silent. Larger strokes that affect strength, sensation, or other brain and nervous system (neurologic) functions can also lead to MID. Risk factors for MID include diabetes, hardening of the arteries (atherosclerosis), high blood pressure (hypertension), smoking, and stroke." Lastly, White Matter Disease (WMD) is a Dementia subtype within the context of cardiovascular conditions that may produce changes in cognition similar to those seen in Vascular Dementia. An MRI scan is typically employed to help identify and distinguish the disorder. Vascular Dementia Source: click here . White Matter Disease Resource: click here . Resource: U.S. government website on vascular/Dementia risks. Video: University of California, Los Angeles Video When stroke becomes Dementia | Dr Amy Brodtmann: The Florey, Parkville, Victoria, Australia Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Primary Progressive Aphasia | Dementia Society of America
Primary Progressive Aphasia (PPA) is a form of cognitive impairment that involves a progressive loss of language function. Primary Progressive Aphasia "Primary progressive aphasia (PPA) is a form of cognitive impairment that involves a progressive loss of language function. Language is a uniquely human faculty that allows us to communicate with each other through the use of words. Our language functions include speaking, understanding what others are saying, repeating things we have heard, naming common objects, reading, and writing. “Aphasia” is a general term used to refer to deficits in language functions. PPA is caused by degeneration in the parts of the brain that are responsible for speech and language. PPA begins very gradually and initially is experienced as difficulty thinking of common words while speaking or writing. PPA progressively worsens to the point where verbal communication by any means is very difficult. The ability to understand what others are saying or what is being read also declines. In the early stages, memory, reasoning, and visual perception are not affected by the disease and so individuals with PPA are able to function normally in many routine daily living activities despite the aphasia. However, as the illness progresses, other mental abilities also decline. Adults of any age can develop PPA, but it is more common in people under the age of 65. People with PPA can have a variety of different language symptoms and no two cases are exactly the same." Source: click here . Additional subtype information: click here . To download an Aphasia caregiver guide, please click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Leave A Legacy | Dementia Society of America
Leaving a legacy to the Dementia Society of America will be a statement of your appreciation for our work. To know more about it in-depth, visit our website! Lasting Legacy Make a Lasting Impact Leaving a legacy to the Dementia Society of America will be a statement of the value you cherish in the work we are doing. Please consider the following as you do your estate planning. Make An Impact | Request Free Guide BEQUESTS Remembering the Dementia Society of America in your will or trust can be easily accomplished with the designation of a specific dollar amount or other property. You may also designate the Dementia Society of America to receive a specified percentage of your estate assets. The following is some sample language that you may use in your will or trust: “I give and bequeath to the Dementia Society of America, Doylestown, Pennsylvania, the sum of $________ (or specific asset or _____ percent of the remainder of my estate) to be used for its general charitable purposes.” To find out more about the Legacy Circle or notify the Dementia Society of America about your bequest, please call 1800-DEMENTIA (800-336-3684), or send an email to info@dementiasociety.org . Download the Declaration of Bequest Intention form here . RETIREMENT PLAN ASSETS for the Dementia Society of America Did you know that you can support the Dementia Society of America’s important work by naming it as the partial or sole beneficiary of your IRA, 401(K), 403(B), or other retirement assets? Why use retirement assets to make a gift? Since retirement plan assets may be subject to income and estate taxes if left to heirs, estate planners often recommend that you designate all or a portion of the assets to a charitable organization like the Dementia Society of America. By leaving such assets to the Dementia Society of America, you can pass other assets to your heirs, which may lower the tax burden. How can I name the Dementia Society of America? You should request a “change of beneficiary” form from your retirement plan administrator. In this form, you can name the Dementia Society of America as the sole or partial beneficiary, or you can name us as a contingent beneficiary in case you are predeceased by your immediate beneficiary. On the form, list us as: Dementia Society, Inc. dba Dementia Society of America PO Box 600 Doylestown, PA 18901 Tax ID # 46-3401769 APPRECIATED ASSETS Did you know you can support the Dementia Society’s critical mission by donating appreciated assets like stocks, real estate, works of art, etc., to the Dementia Society of America? Why donate appreciated assets? By donating an appreciated asset to the Dementia Society of America, you may benefit from an income tax charitable deduction at the current market value and not pay capital gains tax on the asset’s appreciation. LIFE INSURANCE SETTLEMENT Did you know? 2.5 million older adults, just like you, every year, will walk away from their life insurance policies with little or nothing to show for all those years of paid premiums. Why? Life has changed, and they may no longer need the benefits, may not be able to afford the payments, or may want to spend the premium money differently, and they do not know there may be a legal option within their rights. But we’re about to share a little-known fact: you can sell it! To l earn more through our life settlement benefit partner , click here . LIFE INSURANCE for the Dementia Society of America Did you know that you can support the Dementia Society’s tradition of compassionate programming by naming the Dementia Society as the partial or sole beneficiary of your life insurance policy? Why life insurance? By leaving the proceeds of an insurance policy to the Dementia Society of America, the proceeds of the insurance policy will not be subject to estate taxes upon your death. Also, if you transfer ownership of the policy to the Dementia Society during your lifetime, you may qualify for an income tax charitable deduction and you may deduct the cost of future premium payments. How can I name the Dementia Society of America? If the policy already exists, you should request a “change of beneficiary” form from the insurance company. You can name the Dementia Society of America as the sole or partial beneficiary or you can name us as a contingent beneficiary in case you are predeceased by your primary beneficiary. On the form list us as: Dementia Society of America PO Box 600 Doylestown, PA 18901 Our IRS tax ID # is: 46-3401769 CHARITABLE TRUSTS For a personal, confidential discussion of the benefit of charitable trusts to fulfill your intent to leave a legacy for the Dementia Society of America please contact us at 1-800-DEMENTIA. None of the above information is intended to be tax advice. Please consult your financial advisers for the implications of charitable giving on your estate plans. Dementia Society, Inc., doing business as Dementia Society of America, is a nonprofit organization incorporated in the Commonwealth of Pennsylvania and registered with the IRS as a nonprofit 501(c)(3). Your contribution is tax-deductible to the fullest extent permitted by law. Please consult your tax advisor. Please view our IRS Determination Letter here. Back to Donate
- Parkinson’s Disease Dementia
Parkinson’s disease dementia can affect memory, judgment, language, and reasoning. Learn more about both common and rare related conditions. PDD Parkinson’s disease Dementia (PDD), a clinical diagnosis related to [Lewy Body Dementia] that can occur in people with Parkinson’s disease. PDD may affect memory, social judgment, language, or reasoning. Autopsy studies show that people with PDD often have amyloid plaques and tau tangles similar to those found in people with Alzheimer's disease, though it is not understood what these similarities mean. A majority of people with Parkinson’s disease develop Dementia , but the time from the onset of movement symptoms to the onset of Dementia symptoms varies greatly from person to person. Risk factors for developing PDD include the onset of Parkinson’s-related movement symptoms followed by mild cognitive impairment and REM sleep behavior disorder, which involves having frequent nightmares and visual hallucinations. Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Frequently Asked Questions
Learn what Dementia is, how it differs from Alzheimer’s, and how diagnosis works. Explore FAQs and resources from the Dementia Society of America. FAQs Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. The word Dementia can elicit many different reactions, and many of these are unfortunately often based on incorrect information. Getting one’s arms around the definitions and meanings of Dementia terminology can be difficult. We offer our top 3 FAQs and want to talk with you about what you are thinking and feeling. Please connect with us here to receive your free package of Dementia education information. FAQs Our top 3 questions... 1. What is Dementia? The simple answer is it's an umbrella term, like "cancer." Cancer is found in different forms, such as breast cancer, leukemia, testicular cancer, melanoma, etc. It's no different with Dementia, there are many forms and types. In addition, Dementias are considered severe forms of cognitive impairment that affect at least two functions of the brain. Examples include memory, decision-making, behavior, motor skills, etc. Memory loss alone does not mean Dementia. 2. What is the difference between Dementia and Alzheimer's Disease? Alzheimer's Disease (often shortened to just "AD"), is simply one very common form of Dementia. There are many types of Dementia besides Alzheimer's. Moreover, not all Dementias are diseases or conditions related to Alzheimer's. 3. Can an Alzheimer's diagnosis be confirmed 100% while someone is alive? Well, the most recent answer used to be "no." But that is changing rapidly. Today, still, only a post-mortem autopsy of the brain tissue can reveal with complete 100% certainty the types of pathology that Dr. Alois Alzheimer discovered over 100 years ago. Yet, within just the past few years, new brain imaging and bodily fluids (blood or cerebrospinal fluid) tests are giving medical professionals more than 90% certainty before death. The science of brain imaging, DNA testing, and other state-of-the-art methods is improving the ability to detect certain telltale signs of all causes of Dementia. But still, not everyone has easy access to the testing advancements available. The best thing to do is not to assume or rubber-stamp a diagnosis. Instead, the Dementia Society of America strongly urges anyone thought to have a cognitive impairment to get the best possible diagnostic workup by a board-certified geriatric or cognitive neurologist and his or her team. Search for a medical professional. Please see our Definitions page for more details on each of the leading forms of Dementia. Do you have additional questions that you would like answered? If so, please contact us . Go back to Education | Click Here




