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- About Us | Dementia Society of America
A leading volunteer-driven organization raising nationwide awareness for all causes of Dementia, including Alzheimer's (AD), Vascular Dementia, and more. Who Are We? Our all-volunteer Board of Directors and Advisory Council members use the power of technology and virtual offices to help us make a real-world difference. Dementia Society of America® (DSA) proudly serves individuals and families across the country who are facing the challenges of over two hundred Dementia-related disorders. Through vital resources, educational outreach, groundbreaking research, and critical programs for caregivers and those diagnosed, we strive to bring hope, understanding, and meaningful support to every community. DSA encourages life-enrichment achievements through its Ginny Gives® Awards Program, which focuses on music and singing, dance and movement, the visual arts, touch, and sensory stimulation. The Dementia CARER®, Dementia SMART®, and Dementia QUEST® Programs recognize those who serve the Dementia community through meaningful care, innovation, and research, respectively. Lastly, DSA often provides the first significant infusion of funding for certain early-stage seed investments in advanced research centered on the causes of and interventions for Dementia, as well as overall brain health-related science. See the Scientific Review Committee members here . LEADERSHIP, ADVISORY COUNCIL, ADVOCATES & SUPPORT TEAM Members Kevin Jameson Salaried CEO | Volunteer Board Member & Chairman | View Bio → Jeff Moyers CFP Volunteer | Board Member & Treasurer | View Bio → Michael Fossel MD PhD Volunteer | Advisory Council, Medical | View Bio → Lauren Schwabish MS CCC-SLP Volunteer, Advisory Council, Speech Pathology | View Bio → Arun Rao MD Volunteer | Advisory Council, Geriatric Medicine | View Bio → Ann Redfield RN MSN Volunteer | Programs | Executive Vice President Emeritus | View Bio → Lilly Roth Volunteer | Board Member & Secretary | View Bio → Michael Trayford DACNB Volunteer | Advisory Council, Medical | View Bio → Minjung Shim PhD BC-BMT Volunteer | Advisory Council, Movement Therapy | View Bio → Kimberly Dolan MT-BC Volunteer | Advisory Council, Music Therapy | View Bio → Blaine Greenfield Volunteer | Board Member, Sr VP & Compliance Officer | View Bio → Vanessa Adams Volunteer | Board Member & Caregiver Advocate | View Bio → Rachel Wiley MS OTR L CDP Volunteer | Advisory Council, Occupational Therapy | View Bio → Samir Patel MD Volunteer | Advisory Council, Geriatric Psychiatry | View Bio → Gary Kozick LCSW Volunteer | Advisory Council - Care Management | View Bio → SUPPORT TEAM Jeannine Forrest PhD RN Independent Contractor - Care Coach | View Bio → Jean Whaley PhD Volunteer | Programs | View Bio → Tami Anastasia MA Independent Contractor - Care Coach | View Bio → Robin Kaufold Hourly Employee - Programs | View Bio → We thank our past Volunteer Board & Advisory Council Members... Barbara Marte Nathan Schulhof Jeff Dershin Eric Hopkins Tony Martin Gary Howard NREMT Sandra DeHaven Natalie Kaye Hayley Francis Cann BMT H Branch Coslett MD Thomas Atkins Partial list of our Partners and Sponsors, please click here . Partial list of our Press Releases, please click here . Access our completed IRS Form W-9 2024-Version, click here . Access our IRS determination letter, please click here . Access our sales tax exemption certificate, please click here . Download our current bylaws; please click here . Our NAICS Code #813212: Voluntary Health Organization IRS 990s: 2013 ; 2014 ; 2015 ; 2016 ; 2017 ; 2018 ; 2019 ; 2020 ; 2021 ; 2022; 2023; 2024 ; 2025; 2026; 2027; 2028; 2029; 2030
- Dementia Society of America®
Dementia Society of America is a volunteer-driven 501(c)(3) nonprofit supporting families affected by dementia, including Alzheimer’s, and more. We are Here to Help Our programs bring much-needed education, local resources, and life enrichment to individuals and families impacted by Dementia. We recognize Dementia caregivers and innovators and raise HOPE by spotlighting relevant research to discover cures and causes and encourage early detection and meaningful interventions. Dementia Society of America is your volunteer-driven 501(c)(3) nonprofit charity serving the nation for all causes of Dementia, including: Alzheimer's (AD), late & young-onset Vascular Dementia Mixed Dementia Lewy Body Dementia (LBD) Frontotemporal Dementia (FTD) CTE, TBI, NPH, HIV, L.A.T.E. & others ... DONATE ONLINE Request Free Guide Read Magazine As heard on... Do you need basic Dementia information? As a Voluntary Health Organization, we focus broadly on all forms of Dementia, sometimes also referred to medically as Major Neurocognitive Disorders (NCD). We have collected top resources from across the country and around the globe for you! We're like a Dementia association, Dementia foundation, and Brain Health resource center - all rolled into one. The Dementia Society of America is here for everyone. Subscribe to Monthly eNews By sharing these resources, we bring HOPE through education about what Dementia is and what it isn't, and help people who live with Dementia continue to lead meaningful lives and support their care partners. This may surprise you, but it summarizes the impact Dementia may have on our families: We believe that more than 9 million Americans live with some form of Dementia today. However, remarkably, even as the ability to make an accurate diagnosis has improved, historically, upwards of 30% of those who received a basic Alzheimer-type Dementia diagnosis (usually in the primary care office/clinic and typically relying on self-reported/observed symptoms and/or family, but without advanced biomarker testing having been done) were thought not to have Alzheimer's disease - yes, they may have developed Dementia, but likely from a different underlying disease/cause.* This points to the need for early screening to be done, more advanced testing to be offered, and starts with an awareness that there are many, many causes of Dementia beyond Alzheimer's. In the U.S., Dementia-related deaths are considerable and estimated to be the 6th leading cause of death in 2023. ** Some would say that the number of deaths attributable to Dementia may be significantly under-reported due to the stigma associated with various diseases, lack of education, or other coexisting health issues that can often occur at the end of one's life. No matter what the numbers are, Dementia is costly in every way possible, both financially and emotionally. Our goal is to provide HOPE and help individuals, caregivers, corporations, and communities who wish to learn more about Dementia through our resources and programs, improving their quality of life. Billions are spent each year on rising healthcare costs relating to Dementia. In addition to the financial burdens, family and care partners who are looking after loved ones and friends are often emotionally frustrated and physically stretched to the limit. Today, there are no cures or effective long-term treatments. Alzheimer's disease and many other causes of progressive Dementia cross the cultural and socioeconomic divides. Rich or poor, or somewhere in between, you can die prematurely just because of Dementia. While you can get great satisfaction, increased inner strength, and a sense of well-being in caring for someone living with Dementia, it is still not easy. Even professional caregivers, paid to give a helping hand and assist those living with Dementia, experience occasional burnout. Person-centered care, and, if possible, person-directed care, requires that we always treat individuals uniquely, with respect and dignity, to the end of their lives. These are the keys to an optimal quality of life and the best possible tomorrows. f="https://plus.google.com/110800689506873609463" rel="publisher">Google+ Subscribe to Monthly eNews Yes, you can help enhance the lives of those living with Dementia and their caregivers! Please get involved, or donate to the Dementia Society today. SELECTED SOURCES *Download/view excerpted source here: 2025 Alzheimer’s Disease Facts and Figures. **Download/view U.S. Centers for Disease Control and Prevention Data Brief 2023
- Dementia Society of America®| Corporate Support
You can donate, match donations, grant funds, or promote employee engagement and corporate social responsibility. Your organization can make a difference! Corporate Support Join the ranks of leading companies and organizations in their support of the Dementia Society of America. You can donate, match donations, grant funds, or promote employee volunteerism, engagement, and corporate social responsibility. Your organization can make a difference! Clicking image will take you to a third-party website. ADT Security Services Amgen Bristol Myers Squibb Capital One ConocoPhillips Duke Energy Fidelity Investments Honeywell Johnson & Johnson Price Waterhouse State Farm UBS Financial W. W. Grainger Aetna Anderson Corp CSX Corporation Chubb Costco Elsevier General Electric Illinois Toolworks Macy's Progressive Insurance State Street US Bank Wells Fargo Allstate Bank of America CVS Health Comcast Disney Excelon Home Depot JP Morgan Chase Merck Securian Financial TD Bank Verizon
Blog Posts (203)
- Dementia Answers: How to Handle Holidays
Click here for Spanish Click here for French Video Transcript [Answer 1023] Welcome and thank you for joining me. Today, we're talking about how to handle the holidays when someone you care for is living with Dementia. Some holidays are joyful, and some are meant to be times of reflection and somberness, but they can also feel confusing or stressful. For someone with cognitive challenges, with some planning, you can help make the season more peaceful and meaningful for everyone. First, Keep Holidays Simple A calm and quiet holiday is better than a busy one. Choose a few special traditions that feel familiar. Avoid loud music, large crowds, or too many decorations that can cause confusion. Try to keep a routine. People with Dementia feel more secure when their day is predictable. Fatigue and over-planning can cause anxiety, so plan meals and visits around their best time of day, usually in the morning or early afternoon. Involve Your Loved One In Small Ways Let them help with safe and simple tasks like folding napkins, stirring batter, or looking through old photos. These activities can bring comfort and help them feel included. Prepare guests ahead of time. Let family and friends know how the person is doing, and remind them to speak slowly, smile, and be patient. If you notice signs of anxiety or distress, be prepared to roll back activities or bring the person into a quieter room. Consider having everyone wear large name tag labels, even if they've been together for years. It lowers stress levels when trying to remember names. Focus on Joy Most importantly, focus on moments of joy and connectedness rather than perfection. Even small smiles or shared memories can mean a lot. On behalf of the Dementia Society of America ® , thank you again for joining me today. Stay informed, stay healthy, and take care of yourself. Disclaimer: We do not endorse or guarantee any products, services, organizations, or external content shared on our site. Real People: Some content produced by the Dementia Society of America may be enhanced or created using Artificial Intelligence (AI). However, Dementia Society content is reviewed by real people, i.e., staff, contributors, and qualified professionals, for accuracy and plain-language clarity. Still, real people and AI can make mistakes. Dementia Society does not provide medical advice; please consult your healthcare professional for specific guidance. Copyright: All Dementia Society content is copyrighted and may only be used with written permission. Contact us .
- Dementia Answers: What Are Clinical Trials?
Click here for Spanish Click here for French Video Transcript [Answer # 1158 ] Welcome, and thank you for joining me. Today, we're talking about clinical trials for disorders that can cause Dementia, and interventions that might seek to avoid cognitive decline or enhance overall brain health. A typical clinical trial is a research study that helps researchers learn more about how to treat or manage a disease or syndrome. Individuals who join clinical trials may try new medicines, non-medical therapies, or care methods that are not yet widely available. There are clinical trials for Alzheimer's disease, vascular Dementia, Lewy body Dementia, frontotemporal Dementia, and other Dementia-related conditions. Some trials test new drugs to slow memory loss or protect brain cells. Others study changes in diet, exercise, or sleep to see if they help people think more clearly or feel better. Before joining a clinical trial, the person living with Dementia and their family will learn what the study involves. This should include discussing the risks, the possible benefits, and what the time commitment is. All trials are voluntary, and participants can usually stop at any time. Medical and research teams closely watch clinical trials to keep people safe. Moreover, some trials may pay for travel or offer small payments for taking part. One of the most significant benefits of joining a trial is that it can help you or others in the future by contributing to the search for better treatments or even cures. If you or a loved one is interested, talk to your medical team or visit trusted websites like clinical trials.gov to learn more. On behalf of the Dementia Society of America ® , thank you again for joining me today. Stay informed, stay healthy, and take care of yourself. Disclaimer: We do not endorse or guarantee any products, services, organizations, or external content shared on our site. Real People: Some content produced by the Dementia Society of America may be enhanced or created using Artificial Intelligence (AI). However, Dementia Society content is reviewed by real people, i.e., staff, contributors, and qualified professionals, for accuracy and plain-language clarity. Still, real people and AI can make mistakes. Dementia Society does not provide medical advice; please consult your healthcare professional for specific guidance. Copyright: All Dementia Society content is copyrighted and may only be used with written permission. Contact us .
- Dementia Answers: What Is Donepezil?
Click here for Spanish Click here for French Video Transcript [Answer 1138] Welcome and thank you for joining me. What is donepezil, also known by the brand name Aricept? It is a prescription medicine often used to treat people with Alzheimer's disease, one cause of Dementia that affects memory thinking and behavior. It is also used off-label with specific other causes of Dementia. Donepezil does not cure the disease. Yet it may provide a slight improvement in symptoms for a while. It works by helping certain brain chemicals that support memory and thinking. Some people who take it may feel more alert or able to do daily tasks a little more easily. Taken orally, donepezil is typically taken once daily with or without food, and it's essential to take it at the same time each day. A slightly different formula is available as a multi-day patch on the skin. Like all medicines, donepezil can have side effects. Some people may feel sick to their stomach, have trouble sleeping, have nightmares, or feel dizzy. These side effects are usually mild, but if they worsen, it's essential to inform the doctor. Donepezil works best when taken as part of a complete care plan, including support from caregivers and healthy daily routines. Monitor its usefulness in collaboration with the medical team and discuss when or if the dose should be adjusted or discontinued. On behalf of the Dementia Society of America ® , thank you for joining me today. Stay informed, stay healthy, and take care of yourself. Disclaimer: We do not endorse or guarantee any products, services, organizations, or external content shared on our site. Real People: Some content produced by the Dementia Society of America may be enhanced or created using Artificial Intelligence (AI). However, Dementia Society content is reviewed by real people, i.e., staff, contributors, and qualified professionals, for accuracy and plain-language clarity. Still, real people and AI can make mistakes. Dementia Society does not provide medical advice; please consult your healthcare professional for specific guidance. Copyright: All Dementia Society content is copyrighted and may only be used with written permission. Contact us .








