View the profile of Arun Rao MD and learn more about their background and involvement with Dementia Society of America. Advisory Council ◄ Back to Members | Arun Rao MD Advisory Council Dr. Arun S. Rao, a fellowship-trained & board-certified geriatrician with over 20 years of experience is the founder & CEO of Geriatrics Planning & Solutions, Inc., a direct-pay house call service for older adults that provides medical care management and consultations. He started this endeavor so he could bring his expertise, passion, & advocacy to the older adults in our area- giving them the answers they need in their homes, on their time. Originally from New Jersey, he obtained his undergraduate degree from The University of Michigan, Ann Arbor, and his M.D. from Rutgers- Robert Wood Johnson Medical School. Subsequently, he completed his internal medicine training at Robert Wood Johnson University Hospital and The Medical Center of Princeton. Dr. Rao then returned to The University of Michigan Medical Center to complete an intense 2-year academic and clinical fellowship in geriatric medicine, with a research focus on infections in long-term care facilities. Over the span of his career, Dr. Rao has served on the faculty of the Division of Geriatrics at Weill Cornell Medical College; lead the Division of Geriatrics at St. Peter’s University Hospital; and been the Medical Director for LIFE St. Mary (a PACE site). Most recently, he has worked at Penn Medicine Princeton Health. He is well-versed in the care of older adults in hospitals, nursing facilities & assisted-living facilities, outpatient practices, and especially at home. With his sound academic base, Dr. Rao can also be a dynamic and informative speaker to provide education on various topics in geriatrics for professionals and the public.

Corticobasal Degeneration (CBD) and Progressive Supranuclear Palsy (PSP) are Parkinson’s-plus syndromes that share some symptoms of Parkinson’s disease. Corticobasal Degeneration Corticobasal Degeneration (CBD) and progressive supranuclear palsy (PSP) are Parkinson’s-plus syndromes, meaning that they are diseases that share some of the symptoms of Parkinson's Disease such as slowing of movements, stiffness, tremors, falls, and shuffling of the feet. They may both also cause changes in memory and thinking. People with PSP also develop problems moving their eyes, called supranuclear palsy, a wide-eyed appearance, and difficulty swallowing. Unlike Parkinson’s disease, people often fall backward instead of forward. They may also develop severe stiffness in the neck. There are several variations on the name of CBD, such as corticobasal syndrome or disease and corticobasal ganglionic degeneration. It is named after the parts of the brain that are damaged: the cortex (the outer part of the brain) and the basal ganglia (deep within the brain). Like Parkinson’s disease, slowing of movements, stiffness, tremors, falls and shuffling of the feet are seen. Problems with movements occur on one side of the body, such as stiffness, shaking, or loss of control. People with CBD may be unable to get their arms to do what they want even if they have the know-how. Sometimes, the arm on that side might move on its own, called alien limb syndrome. More information from the source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

We also offer a CE training program for nurses, care managers, and other professionals. The program combines live-hosted discussions with pre-recorded videos. To learn more about the CE program, feel free to contact us. CE Training CLICK ON IMAGE BELOW TO DOWNLOAD FLYER REQUEST INFO National Association of Social Workers

Consider joining a trial if you are living with a form of Dementia or wish to participate as a healthy control subject. Dementia Clinical Trials Clinical trials are an important feature of the commercial drug discovery and disease intervention process. Consider joining a trial if you are living with a form of Dementia and meet the trial's criteria, or if you wish to participate as a healthy control subject. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. The links below will open websites in a separate web browser page, so you can keep your place here. ClinicalTrials.gov- Clinical Drug Trials Database Comprehensive service of the U.S. National Institutes of Health. Dementia Clinical Trials for Healthy Volunteers in the U.S. This PDF file was compiled from the ClinicalTrials.gov website on September 18th, 2017, to provide a useful tool to find over 90 trials currently recruiting healthy participants as control subjects. Please follow the links provided within the document to obtain more information on specific clinical trials. CenterWatch- Dementia Clinical Drug Trials Database Search to find trials in your area, and sign-up for email alerts. Antidote.me- Dementia Clinical Drug Trials Database Search trials that match your age, location, health need and more.

Mixed vascular-degenerative Dementia is the most common cause of dementia in the elderly. Learn more about both common and more rare conditions. Contact us. Mixed Dementia "Autopsy studies looking at the brains of people who had Dementia suggest that a majority of those age 80 and older probably had 'Mixed Dementia ,' caused by processes related to both Alzheimer’s disease [or, other Dementia] and vascular disease. In fact, some studies indicate that mixed vascular-degenerative Dementia is the most common cause of dementia in the elderly. In a person with mixed Dementia, it may not be clear exactly how many of a person’s symptoms are due to Alzheimer’s or another type of Dementia . In one study, about 40 percent of people who were thought to have Alzheimer’s were found after autopsy to also have some form of cerebrovascular disease. Several studies have found that many of the major risk factors for vascular disease also may be risk factors for Alzheimer’s disease. Researchers are still working to understand how underlying disease processes in Mixed Dementia influence each other. It is not clear, for example, if symptoms are likely to be worse when a person has brain changes reflecting multiple types of Dementia. Nor do we know if a person with multiple Dementias can benefit from treating one type, for example, when a person with Alzheimer’s disease controls high blood pressure and other vascular disease risk factors." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

Find opportunities for free online courses and education about Dementia and caregiving. Online Training Important Notice: Dementia Society of America (DSA) does not provide medical advice. These courses are for informational purposes only; they are not intended as a substitute for professional medical advice. Always seek the advice of a qualified healthcare provider for any medical questions. Click below on the links to find free online Dementia caregiver training: Powerful Tools for Caregivers Powerful Tools for Caregivers gives you the skills to care for yourself while caring for someone else. You become a better caregiver by taking care of your health and well-being. Dementia Unplugged: Care Conversations Videos Created by the Dementia Society of America in partnership with Dementia Coach On-Call, this site offers several videos to help you care for someone living with Dementia, including driving, end-of-life, agitation, mealtimes, vacations, etc. UCLA Dementia Caregiver Videos Created by the University of California Los Angeles (UCLA), you will find many videos to help you care for someone living with Dementia, which includes bathing, taking meds, hallucinations, repetitive behaviors, etc. Johns Hopkins- Free Caregiver Training and Certification "Living with Dementia: Impact on Individuals, Caregivers, Communities, and Societies." Health professionals and students, family caregivers, friends of affected individuals, and others interested in learning about Dementia and quality care will benefit from completing the 5-week course at their School of Nursing. Don't see what you're looking for? Please contact us . Go back to Education | Click Here

View the profile of Robin Kaufold and learn more about their background and involvement with Dementia Society of America. Administration ◄ Back to Members | Robin Kaufold Programs Team

Learn the signs, symptoms, and treatment options for Frontotemporal Dementia (FTD). Frontotemporal DONATE "Frontotemporal Dementia (FTD) describes a clinical syndrome associated with shrinking of the frontal and temporal anterior lobes of the brain . Originally known as Pick’s disease, the name and classification of FTD has been a topic of discussion for over a century. As it is defined today, the symptoms of FTD fall into two clinical patterns that involve either (1) changes in behavior, or (2) problems with language. The first type features behavior that can be either impulsive or bored and listless and includes inappropriate social behavior ; lack of social tact; lack of empathy; distractability; loss of insight into the behaviors of oneself and others; an increased interest in sex; changes in food preferences; agitation or, conversely, blunted emotions; neglect of personal hygiene; repetitive or compulsive behavior; and decreased energy and motivation. The second type primarily features symptoms of language disturbance, including difficulty making or understanding speech, often in conjunction with the behavioral type’s symptoms. Spatial skills and memory remain intact. There is a strong genetic component to the disease; FTD often runs in families." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

Learn about self-care or being a Dementia care partner. Seek advice from a qualified physician or health care professional about any medical concern. Care Education The perfect place to start. Learn about self-care or being a Dementia care partner. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified physician or health care professional about any medical concern. Do not disregard professional medical advice because of anything you may read, see or hear on this website, or contained within any of our communications, whether electronic or otherwise. The views of individuals quoted on this site and elsewhere, are not necessarily those of the DSA. With this said, we hope that the Dementia information we present on this site, including our programs, offers answers and approaches that can be used to enrich the lives of those living with the syndrome, their caregivers, and the community at large. Explore Dementia Care In-Depth | Click Below | FAQs Our frequently asked questions about Dementia. Health Information Links Find Dementia clinical trials , and more. Dementia Definitions Learn about 10+ leading forms of Dementia. Discover Helpful Technology Find Mobile Apps, Products and Services. Caregiver Training Online Training The Dementia Action Plan™ In-Person Presentations Videos & Publications Read our newsletter, and watch our videos. Web Directories Find Dementia homecare, doctors, and more. Collaborators Other organizations around the globe. Books, Movies, Music & More Fiction, Non-Fiction and Creative Expressions Dementia | Brain Health Blog Dementia | Brain Health Blog Online Blog Posts The Cognitive Action Plan™ In-Person Presentations

Join the Dementia Society of America’s Leadership Circle to expand awareness of dementia and Alzheimer’s, creating a brighter future for those affected. Leadership Circle Leadership is Action. Leadership is a Big Vision. Leadership is a Perspective. Leadership is a set of Principles. Dementia Society of America's Leadership Circle brings like-minds together to make a meaningful difference! The only way to do that is to invest in the future, a new world! A world of love and care that is person-centered, a world that is built upon the notion that at some point, the only thing that really matters is quality, not quantity, of life. Click here to learn about the meaning of the Leadership Circle logo. 10 Leadership Circle Principles We are all connected in the circle of life; We are considered alive inside, even if our ability to outwardly communicate is hampered by Dementia or other conditions; I/we wish to touch with love, think with the heart, feel with the mind, and express appreciation with a simple smile; I/we seek to understand all Dementias as much as possible; I/we seek to prevent all Dementias with a holistic approach; I/we desire to detect and prevent cognitive impairment early; I/we treat others with a person-centered care approach; I/we want personal end-of-life choices to be respected by family, friends, and healthcare professionals; I/we speak openly and with compassion about all people, and about all forms of Dementia; I/we create the best possible tomorrow by taking the most meaningful actions today! CLICK HERE TO ASK ABOUT JOINING Annual individual/family contributors are Supporters. Annual corporate contributors are Sponsors. Annual Leadership Circle Levels are: BRONZE $1,000+ SILVER $2,500+ GOLD $5,000+ PLATINUM $10,000+ By joining with us and becoming an on-going Leadership Circle Supporter or Sponsor , you will demonstrate an eagerness and earnestness to provide: Dementia education for all; great quality-of-life programs for all; recognition to wonderful caregivers and care partners; accolades upon innovators and innovations that assist with personal Activities of Daily Living (ADLs), Dementia care management, and enhanced cognitive health. At every level you will receive a beautiful Leadership Circle recognition certificate (personally signed by the DSA president), that you can display to show your support. We may also like to recognize you publicly, unless you specifically tell us in writing that you would like to remain anonymous . Please learn more by clicking here . CLICK HERE TO ASK ABOUT JOINING

People with PSP may develop eye movement problems (supranuclear palsy), a wide-eyed appearance, and difficulty swallowing. To learn more, contact us. Progressive Supranuclear Palsy Corticobasal Degeneration (CBD) and progressive supranuclear palsy (PSP) are Parkinson's-plus syndromes, meaning that they are diseases that share some of the symptoms of Parkinson's Disease, such as slowing of movements, stiffness, tremors, falls, and shuffling of the feet. They may both also cause changes in memory and thinking. People with PSP also develop problems moving their eyes, called supranuclear palsy, a wide-eyed appearance, and difficulty swallowing. Unlike Parkinson's disease, people often fall backward instead of forward. They may also develop severe stiffness in the neck. There are several variations in the name of CBD, such as corticobasal syndrome or disease and corticobasal ganglionic degeneration. It is named after the damaged parts of the brain: the cortex (the outer part of the brain) and the basal ganglia (deep within the brain). Like Parkinson's disease, movement slowing, stiffness, tremors, falls, and shuffling of the feet are seen. Movement problems occur on one side of the body, such as stiffness, shaking, or loss of control. People with CBD may be unable to get their arms to do what they want, even if they know how. Sometimes, the arm on that side might move independently, which is called alien limb syndrome. For more information from the source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

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