How You Can Get Involved in Dementia Research
- Team Writer
- 1 day ago
- 2 min read
Clinical Research Depends on Volunteers
We previously discussed the two main types of clinical research: clinical trials and observational trials. Both types of clinical research support our understanding of how Dementia develops and which practices or treatments can affect the disease and manage symptoms. Both types also share a common, very important feature: they involve human participants who have volunteered to take part in scientific studies.
If you or a loved one is interested in helping to advance our understanding of the disease, its impact on caregivers, or what treatments may delay or prevent the disease or help manage symptoms, then read on. You'll learn about different resources you can tap into to participate.
How to Get Involved in Dementia Research
Research cannot move forward without volunteers. If you or a loved one is interested in contributing to scientific progress, here are ways to get involved:
1. Ask Your Healthcare Provider
Talk with your neurologist or primary care provider about ongoing clinical trials that may be appropriate.
2. Explore Clinical Trial Registries
ClinicalTrials.gov allows you to search by condition and location.
The Lewy Body Dementia Association Trial Tracker lists active studies.
The National Institute on Aging (NIA) maintains information about Alzheimer’s and related Dementias research.
3. Join Research Registries
Some programs allow individuals to register their interest and be contacted about future studies. Here are a few examples:
A national volunteer registry that helps people of all ages and health backgrounds find clinical studies (not just Dementia-related). It matches volunteers to researchers based on health interests and allows sign-ups with basic information.
A registry aimed at people interested in Alzheimer’s prevention research. Individuals receive updates on prevention-focused studies, notification of clinical trial opportunities, and research news.
An online registry where volunteers help accelerate research for Alzheimer’s, Parkinson’s, depression, PTSD, and other brain disorders. Participants complete questionnaires and may be contacted over time for specific studies.
More research registry options are available here.
4. Participate in Observational Studies
Not all research involves medications. Some studies focus on brain imaging, memory testing, or blood markers to better understand disease progression.
5. Consider Brain Health Studies
Prevention and early-detection research often includes people without Dementia but at risk. Participation is always voluntary, and researchers explain potential risks and benefits before enrollment.
Moving Forward Together
At Dementia Society of America, we believe knowledge empowers families. While there is no cure yet, today’s research is more diverse, targeted, and hopeful than ever before.
If you have questions about research opportunities or would like help finding reliable information, we’re here to support you.
Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.