Updated: Jul 28
Lewy body Dementia, or Dementia with Lewy bodies, is the second most common type of progressive dementia following Alzheimer’s disease. The disease is characterized by protein deposits in nerve cells in the brain regions that control thinking, memory, visual processing, and motor control.
In this article, we’re taking a deep dive into Lewy body Dementia to explore its origins, symptoms, and treatments, and therapies that can help you or a loved one navigate your Dementia journey.
Fact #1: Lewy body Dementia is one of the primary causes of Dementia in older adults.
Usually beginning after age 50, Lewy body Dementia affects more than one million people in the United States. Experts have discovered that it appears to affect more men than women, making gender one of the primary risk factors. Other risk factors include advancing age and a family history of Lewy body dementia or Parkinson’s disease.
Fact #2: Lewy body Dementia is named after the scientist Fredrich H. Lewy.
While researching Parkinson's disease in the early 20th century, the German-born American neurologist Friedrich H. Lewy discovered abnormal protein deposits on the brain later called Lewy bodies. When these Lewy body proteins build up, they can disrupt the brain's normal functioning and cause problems with how the brain works, affecting memory, movement, thinking skills, mood, and behaviors.
Fact #3: Lewy body Dementia is a progressive disease with a range of cognitive and physical symptoms.
The symptoms of Lewy body Dementia emerge slowly and gradually worsen with time, making it a progressive disease. In the early stages, people living with this type of Dementia may experience mild symptoms that allow them to function relatively normally. As the disease advances, people may notice changes in alertness and attention or movement and posture, including confusion, hallucinations, and muscle stiffness. In the later disease stages, people living with Lewy body Dementia often depend on others for assistance and care.
Fluctuating alertness and thinking functions
Repeated visual hallucinations
REM sleep behavior disorder, where people act out dreams while sleeping
Fact #4: Lewy body Dementia can be hard to diagnose.
There is no single test to diagnose Lewy body Dementia. Doctors diagnose the disease by ruling out other conditions with similar symptoms. For instance, Lewy body disease shares similar symptoms with Parkinson's and Alzheimer's diseases, causing experts to speculate that it might be related.
Lewy body Dementia diagnostic testing may include neurological and physical exams, mental ability assessments, blood tests, brain scans, and heart tests. In addition to the test findings, a Lewy body disease diagnosis requires a progressive decline in thinking abilities and two of the following:
Fact #5: Currently, there is no cure for Lewy body Dementia, but treatments and therapies can help alleviate the symptoms.
Doctors often use medications to help people living with Lewy body Dementia. Alzheimer’s and Parkinson’s disease medications can treat neurological and physical symptoms, while other medications can offer relief from sleep and movement problems.
Some people living with Lewy body Dementia find non-drug approaches helpful, such as modifying the environment to reduce distractions, receiving soothing responses for reassurance, and following daily routines with simple tasks.
Physical, occupational, speech, and mental health therapies can also play a role in symptom relief.
Our Ginny Gives grant program provides other healing therapies that help people connect through art, music, dance, and touch.
Fact #6: There are many supportive resources available to help people living with Lewy body Dementia and their families and caretakers.
Our supportive resources provide much-needed information, local resources, and life-enrichment programs to enhance the lives of individuals and families affected by Lewy body and other types of Dementia, including:
Truthful definitions to expand your vocabulary
Care education to guide your decisions
Dementia help resources to further your understanding and learn how to help
Brain health information from reliable and trustworthy sources
Relevant and topical streaming program for individuals and caregivers.
No-fee memorial registration to pay tribute to a life well-lived
To learn more about our programs and offerings that can help people living with Lewy body disease and other types of Dementia, contact us online or call 1-800-DEMENTIA (1-800-336-3684).
Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis, or treatment.