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- The Dementia Action Plan Workshop | Dementia Society of America
Helping families facing Alzheimer's disease, Vascular Dementia, Lewy Body, FTD, MCI, and more through education, research, and life enrichment. Dementia Society of America The Dementia Action Plan ® Educational learning experiences with factual, easy-to-understand concepts, and accessible information. DONATE The recorded presentation was filmed before a live studio audience at the Philadelphia PBS® station affiliate, WHYY-TV®; this 1-hour TV-show style program is guaranteed to be a crowd-pleaser. Extremely informative, eye-opening, and with clearly explained calls to action. It is a must-see educational talk for audiences everywhere that will engender knowledge, personal commitment, and hope. Led by the Dementia Society of America's founder and nationally recognized spokesperson, Kevin Jameson, this 1-hour presentation will take you through the basics of the who, what, where, when, and why of Dementia care in the present and future. By utilizing the 7 simple steps detailed in The Dementia Action Plan, you have the potential to make a lasting impact on your ability to successfully navigate life as a caregiver and partner or as someone living with Dementia, no matter what challenges lie ahead. Mr. Jameson brings nearly 40 years of professional on-stage experience and skill to this lively, emotional, uplifting talk. You walk out feeling empowered to make a difference in your life and the lives of those you care most about. Download the free companion workbook, click here . Please get in touch with us to request an in-person or virtual Zoom presentation at your next event. Links highlighted within the program (coming soon) ... Learn more about support groups. Learn more about how to communicate. Learn more about "6 Degrees of Separation." Learn more about how a diagnosis is made. Learn more about clinical trials. Learn more about normal aging. Go back to Education | Click Here
- Chronic Traumatic Encephalopathy
Chronic Traumatic Encephalopathy is a progressive degenerative disease of the brain found in athletes with a history of repetitive brain trauma. Learn more. CTE Chronic Traumatic Encephalopathy (CTE) is a progressive degenerative disease of the brain found in athletes (and others) with a history of repetitive brain trauma, including symptomatic concussions as well as asymptomatic subconcussive hits to the head. CTE has been known to affect boxers since the 1920s. However, recent reports have been published of neuropathologically confirmed CTE in retired professional football players and other athletes who have a history of repetitive brain trauma. This trauma triggers progressive degeneration of the brain tissue, including the build-up of an abnormal protein called tau. These changes in the brain can begin months, years, or even decades after the last brain trauma or end of active athletic involvement. The brain degeneration is associated with memory loss, confusion, impaired judgment, impulse control problems, aggression, depression, and, eventually, progressive Dementia. Page Source: click here . Concussion Legacy's Suspected CTE Caregiver Guide: click here. Centers for Disease Control's CTE information: click here. Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- AIDS Dementia Complex
AIDS dementia complex (ADC) occurs primarily in persons with more advanced HIV infection. When left untreated, ADC can be fatal. For more information, contact us today. ADC "AIDS dementia complex (ADC), or HIV-associated dementia (HAD), occurs primarily in persons with more advanced HIV infection. Symptoms include encephalitis (inflammation of the brain), behavioral changes, and a gradual decline in cognitive function, including trouble with concentration, memory, and attention. Persons with ADC also show progressive slowing of motor function and loss of dexterity and coordination. When left untreated, ADC can be fatal. It is rare when anti-retroviral therapy is used. Milder cognitive complaints are common and are termed HIV-associated neurocognitive disorder (HAND). Neuropsychologic testing can reveal subtle deficits even in the absence of symptoms." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Memorials | Dementia Society of America
Create a lasting memorial tribute to a loved one. Dementia Society of America supports families affected by Alzheimer’s, Vascular Dementia, FTD, and more. In Loving Memory If you wish to have the Dementia Society of America receive donations "in lieu of flowers," please consid er adding the following statement to the obituary: DONATE "In lieu of flowers, please make online gifts in memory of ______, to the Dementia Society of America www.DementiaSociety.org/donate ." Acknowledgments We send an acknowledgment letter when the donor provides the next of kin's name and address. In addition, families can contact us 4-6 weeks after the obituary's publication, and t he Society will furnish a list of memorial donors and their addresses. To obtain a list, please make your request via our contact page. Families and Funeral Directors, if you have any donation-related questions, please click here to use our contact form or call 1-800-336-3684 and select option #3. Given our work helping families facing Dementia, our volunteers do their best to respond as promptly as possible. In addition to an obituary published by the Funeral Director, you may choose to create a memorial page to remember the life of a loved one who battled Dementia. Ancestry.com Memorial Page Option Dementia Society of America®, in partnership with Ancestry.com® and their We Remember ™ initiative, has established memorials with no fees, and the memorial page will remain online without needing renewal. Together, it's our way to help pay tribute to a life well-lived. If you set it up through the link below, the We Remember memorial pages link to our donate page, where family and friends can donate in memory or honor of a loved one. Please see the example below. Click Here to Set Up a Memorial Page
- Posterior Cortical Atrophy | Dementia Society of America
Posterior cortical atrophy (PCA), also called Benson's syndrome, is the visual variant of Alzheimer’s disease. Posterior Cortical Atrophy "Posterior cortical atrophy (PCA), also called Benson's syndrome, is the visual variant of Alzheimer’s disease. The disease causes shrinkage (atrophy) of the back part of the brain, causing a progressive decline in vision. People with PCA may often go to see an eye doctor first, thinking that their difficulties are due to a problem with their eyes and that they may need new glasses. Visual impairment commonly develops as people get older, and in most cases a decline in vision is due to this natural aging process. In people with PCA, the visual problems are not due to problems with their eyes. Rather, the shrinking brain can no longer interpret and process the information received from the person's healthy eyes. In the vast majority of PCA cases, the underlying cause is Alzheimer's disease , and the brain tissue at autopsy shows an abnormal accumulation of the proteins amyloid and tau that form plaques and tangles as is seen in Alzheimer's. Although PCA is almost always caused by Alzheimer's disease, it can also be due to other diseases including Dementia with Lewy bodies and Creutzfeldt-Jakob disease. PCA is thought to affect less than 5% of people with Alzheimer's disease, although epidemiological studies are lacking and PCA has been under-recognized in the past." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Creutzfeldt Jakob Disease
Creutzfeldt-Jakob disease can occur in people without risk factors and sometimes caused by exposure to diseased brain or nervous system tissue. Read more. CJD "This rare brain disorder usually occurs in people without risk factors . This condition may be due to an abnormal form of a protein. Creutzfeldt-Jakob disease [Dementia] sometimes may be inherited or caused by exposure to diseased brain or nervous system tissue. Signs and symptoms of this fatal condition usually appear around age 60 and initially include problems with coordination, memory, thinking and vision. Symptoms worsen over time and may include the inability to move or talk, blindness, or infections." Funeral Professionals, you may click here to view a 40 minute educational video from our friends at The CJD Foundation . Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Dementia Society Blog Posts | Dementia Society
All Posts Dementia Brain Health BBN Search Beth W. Orenstein May 1 7 min Dementia and Aromatherapy Is there a connection between smell and memory? No question. 15 0 comments 0 Post not marked as liked Team Writer Apr 15 1 min BBN | Vol 1 Issue 1 | Better Brain Research™ A study of Fruit flies has uncovered new insights into the brain’s sense of direction and how regions of the brain communicate to help us... 163 0 comments 0 3 likes. Post not marked as liked 3 BBN Puzzler Apr 15 1 min BBN | Vol 1 Issue 1 | Crossword Revealed Click here to go to the magazine. 516 0 comments 0 Post not marked as liked Team Writer Apr 1 5 min BBN | Vol 1 Issue 1 | Nun Study Reveals Secrets Unlocking brain health and resilience. Remarkable discoveries have been unfolding among the congregation of the School Sisters of Notre... 828 0 comments 0 1 like. Post not marked as liked 1 Team Writer Mar 1 4 min BBN | Vol 1 Issue 1 | Seeds of Better Brain Health How planting seeds can boost brain health. Did you know that the simple act of growing a plant from seed is not just a garden adventure... 651 0 comments 0 2 likes. Post not marked as liked 2 Beth W. Orenstein Feb 1 6 min Practical Tips for Daily Life: Helping a Family Member Living With Dementia Caring for someone living with Dementia brings rewarding moments, and it may also have its challenges. 1,689 1 comment 1 Post not marked as liked Lisa Rehburg Jan 18 4 min Hidden Treasure to Consider for Care Russell Conwell, the founder of Temple University, delivered an inspirational lecture entitled “Acres of Diamonds” across the country in... 199 0 comments 0 Post not marked as liked Beth W. Orenstein Jan 1 6 min How to Make a Home Safer for Someone Living With Dementia: Safety Tips & Adaptations Setting Up a Safe Space When you’re caring for a parent or a loved one living with Dementia at home, setting up a safer space may help... 1,530 0 comments 0 Post not marked as liked Janet Shagham Dec 1, 2023 3 min Dementia May Affect Motor Skills There is accumulating evidence that dementia has a long preclinical phase that may begin years or even decades before a clinical... 1,055 1 comment 1 1 like. Post not marked as liked 1 Dr. Michael Trayford Nov 1, 2023 2 min Ditch The Bedroom TV Falling asleep and staying asleep are incredibly important for brain health and cognitive function. Sleep may be affected by specific... 1,173 0 comments 0 4 likes. Post not marked as liked 4 Dr. Michael Trayford Oct 1, 2023 2 min Take Time to Reply This brain health tip is as much about quality communication as it is about stress management. On the surface, taking time to reply to... 1,505 0 comments 0 5 likes. Post not marked as liked 5 Janet Shagham Sep 1, 2023 3 min Take Into Consideration: POA and Legal Matters There are many legal matters you must attend to before you or another person can be an effective caregiver/care partner. Two of the most... 172 0 comments 0 2 likes. Post not marked as liked 2 Dr. Michael Trayford Aug 1, 2023 2 min Do Something You Enjoy Exercise is critically important for brain health and vitality. One of the keys to establishing a consistent exercise routine is to... 886 0 comments 0 4 likes. Post not marked as liked 4 Janissa Delzo Jul 1, 2023 3 min 4 Ways to Create a Positive Space for People Living with Dementia Create a space for someone living with Dementia, so they feel empowered, respected, full of purpose. 1,763 0 comments 0 10 likes. Post not marked as liked 10 Annette Ingram Jun 1, 2023 6 min Vascular Dementia Care: Understanding The Unique Challenges And How To Overcome Them Vascular Dementia (VaD) is a type of Dementia caused by reduced blood flow to the brain, leading to cognitive decline and impairment.... 1,380 1 comment 1 6 likes. Post not marked as liked 6 Team Writer May 2, 2023 3 min May is Dementia Awareness Month Awareness and education are the first steps to understanding Dementia. Dementia is a complex syndrome that affects millions of... 1,206 0 comments 0 5 likes. Post not marked as liked 5 Tonya Russell Apr 3, 2023 3 min Start With 3 Dementia Planning Strategies A Dementia diagnosis can be confusing and challenging, but individuals and families can feel empowered as they navigate their next steps.... 1,020 0 comments 0 5 likes. Post not marked as liked 5 Dr. Michael Trayford Feb 1, 2023 2 min Protect Your Noggin. You're Worth It! #TBI #Sports #Dementia #BrainHealth At first, glance, wearing your helmet might seem like pure common sense. Unfortunately, we still see... 249 0 comments 0 3 likes. Post not marked as liked 3 Janet Shagham Jan 1, 2023 3 min What Are The Differences Between Signs, Symptoms, And Clues of Dementia? Dementia Signs, Symptoms, and Clues 417 0 comments 0 5 likes. Post not marked as liked 5 Rachelle Klein Dec 4, 2022 2 min Food For Thought The phrase "food for thought" refers to an idea or piece of information worth thinking about. But there is some truth to this phrase when... 1,663 0 comments 0 1 like. Post not marked as liked 1
- Gary Howard NREMT
Advisory Council ◄ Back to Members | Gary Howard NREMT Advisory Council Gary Howard was born in Lancaster, California, and after graduating high school, joined the Los Angeles County Fire Dept. Gary was promoted to Captain of the ranks while still keeping his paramedic license. Gary has a Bachelor of Science in Anatomy. Diagnosed with Young Onset Alzheimer's, he is currently living in Findlay, IL, with his wife Patty and two sons.





