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  • Donate by Mail | Dementia Society of America

    Are you donating by check? Please use Dementia Society of America, PO Box 600, Doylestown, PA 18901. Donate by Mail Please send checks made payable to: Dementia Society of America PO Box 600, Doylestown, PA 18901 Click Here to Print / Download Mail-in Form for Checks Thank you for your incredible support. Four to six weeks following the memorial service and/or the publication of the obituary (allowing most donations to have been received), families may contact us and request a complete Memorial Report listing all known donors. Back to Donate

  • Down Syndrome Dementia | Dementia Society of America

    Individuals with Down syndrome (trisomy 21) may develop dementia with clinical and neuropathologic features that closely resemble Alzheimer’s disease. Down Syndrome Dementia "Individuals with Down syndrome (DS), or trisomy 21, [may] develop a clinical syndrome of Dementia with clinical and neuropathologic characteristics almost identical to those of AD [Alzheimer's Disease] as described in individuals without DS. DS was recognized as a unique form of developmental disability in 1866, and few years after, in 1876, early aging was already recognized. Further publications confirm not only the premature aging and the clinical deterioration, but also the presence of the neuropathological changes of AD. Accelerated aging in DS occurs in many other systems and is not limited to the central nervous system (CNS) alone. The recognition that DS is associated with trisomy 21 helped in the understanding of the genetic basis of this association. The neuropathology of AD in persons with DS closely resembles that of AD in persons without DS. Autopsy studies in persons with DS showed that almost all had brain lesions meeting the criteria for AD." Source: click here . Alzheimer’s Disease & Down Syndrome: A Practical Guidebook for Caregivers. Produced in part by the National Down Syndrome Society. Click here to download . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

  • Dementia Aware America | Dementia Society

    Dementia Community Collaboratives™ (DCC) support grassroots advocacy, care, and awareness among businesses, nonprofits, and community organizations. Welcome to Dementia Aware America™ Dementia Community Collaboratives™ Dementia Community Collaboratives™ and Dementia Aware America™ encourages grassroots Dementia advocacy, care, and awareness initiatives among interconnected businesses, professionals, nonprofits, faith-based organizations, and civic and governmental organizations. - Our Mission - Promote Dementia initiatives through community-wide sector engagement. Sectors include retail, hospitality, finance, government, first responders, healthcare, faith-based communities, nonprofits, transportation, housing, home care service providers, community care organizations, and more. Importantly, we seek to include those living with Dementia and their care partners in all we do. We recognize that Dementia is not a disease in and of itself but rather the outward expression of memory loss, behavioral and functional changes, and a myriad of other cognitive challenges that can occur along with diseases such as Alzheimer's Disease, Vascular Dementia, Lewy Body Dementia, Frontotemporal Dementia, CTE (chronic concussion-related Dementia), traumatic brain injury (TBI), among many others. We understand that Dementia is often misunderstood, misdiagnosed, and subject to stigma, fear, taboo, and apathy. We aim to create a ready, supportive, and informed environment committed to truth, love, and compassion. We offer an "open door" to all those affected and seek to make the most meaningful actions today to create the best possible tomorrows. We are philosophically aligned with the following initiatives: AARP Age-Friendly Communities, USAging Dementia Friendly America / Dementia Friends, and the World Health Organization's Global Age-Friendly Cities and Communities. - Selected Tools - The Dementia Action Plan Aware & Share Card The Big Umbrella HELP US BUILD A NATIONWIDE NETWORK OF DEMENTIA COMMUNITY COLLABORATIONS... Founding Community 2017: Doylestown, Bucks County, PA Dementia Society of America Doylestown Health Doylestown Borough Doylestown Township Bucks County Commissioners Bucks County Area Agency on Aging Bucks County Department of Consumer Protection Pennsylvania House of Representatives Central Bucks Regional Police Department Central Bucks Emergency Medical Services Doylestown Fire Company James A. Michener Art Museum The Cornerstone Clubs Citizens & Northern Bank Contact Us Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents herein are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. DSA does not endorse any of the resources listed herein or within separate sites linked to. The information contained within these directories is thought to be reliable but is not guaranteed to be accurate. It is primarily compiled from provider descriptions of their own services as well as other public data sources and is subject to change without further notice. For help with finding resources, please call our Info Line at 1-800-DEMENTIA. Image: 2014 Copyright Mind Your Design. Used with written permission.

  • Ride Against Dementia Challenge | Dementia Society of America

    Ride Against Dementia information. Learn more through our FAQ, and connect to the online registration on Facebook. Join Challenge FAQ SHIRTS JOIN THOUSANDS OF OTHERS! Dementia Society of America's 2025 Ride Against Dementia ™ Anchor 1 FAQ What is the Ride Against Dementia™? Ride Against Dementia (RAD) is a cycling challenge to bike 100 or more miles throughout May 2025. The challenge (#1) helps raise awareness for Dementia; (#2) enables those who wish to raise money to fund our research and life enrichment programs. Tell me more about the Dementia Society of America. We're a national, volunteer-driven 501(c)(3) nonprofit organization. Please visit our home page , learn about our mission, and explore our site. Is this challenge only on Facebook? Yes. Still, that doesn't mean you can't share your pictures and participation on Instagram, LinkedIn, Twitter, or other social media platforms. Registration, mile tracking, Messenger communications, and leaderboards are handled on Facebook. To create a fundraiser and join the challenge group now, click here . Are you looking to order RAD Challenge T-Shirts? Please click here . Someone wants to donate to a RAD fundraiser but isn't on Facebook? Send the person to our donate page, www.dementiasociety.org/donate , and instruct them to enter the name of your fundraiser, most likely, your name, in the "In Honor of" field. They can also donate by check; click here . Want to modify, get a refund, or adjust recurring donations made through Facebook payments? Please go here to find the link to Facebook payments help. Facebook is the ONLY entity that can make changes, and nonprofits do not have that ability. What hashtag should I use? #RideAgainstDementia and/or #RAD Must I donate to participate or ask others to do so? We'd love it if you did, but no one is required to donate. Must I pay a registration fee? There's no registration fee. Must I only ride a bicycle? You may ride or drive practically anything else, e.g., a stationary bike, a rowing machine, etc. You can also walk, run, roll, and crawl (we don't recommend crawling), but you get the idea - if something other than a bike makes more sense for you, do it. Please log your miles traveled through Facebook Messenger after every portion of your journey to be counted on the leaderboard. When will miles start to be counted? Your RAD miles will start to be tabulated on May 1, 2025. Once you're part of the group, follow the instructions to access the "Menu" through Messenger to log miles. When can I start my fundraising? You may start a RAD fundraiser and invite others to join you now. Please follow the instructions on the Facebook page to "Get Started." Why 100 miles? Some would say, "What?! OMG, 100 miles? That's a long way!" Well, you can accomplish the goal over an entire month. Can I sync miles with Strava, Garmin, Fitbit, or another wearable? We're sorry, but we're unable to connect electronic devices. Why only 100 miles? Can I set a higher goal? If 100 miles is your typical Saturday morning ... sure! LEVEL UP! Want Dementia Education Information? Please click here to contact us . Join Challenge

  • Traumatic Brain Injury

    A person who has experienced a single traumatic head injury could develop posttraumatic Dementia, which may cause long-term memory problems. To learn more. TBI "A person who has experienced a single traumatic head injury [Traumatic Brain Injury (TBI)] could develop a condition called posttraumatic Dementia, which may cause symptoms such as long-term memory problems. Depending on the part of the brain that's injured, this condition can cause Dementia signs and symptoms such as uncoordinated movement and impaired speech, as well as slow movement, tremors, and rigidity (Parkinsonism). Symptoms may not appear until many years after the actual trauma." Source: click here . Additional Resource List Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

  • Intellectual Property | Dementia Society of America

    Dementia Society of America protects its intellectual property, actively monitoring and defending trademarks, copyrights, and patents to support its mission. Intellectual Property Dementia Society of America® values the programs and initiatives that we have developed over the years. We serve others by protecting the investments we've made into our trademarks, copyrights, and patents. Please respect all of our rights. Clicking image will take you to a third-party website. 6413256 1-800-DEMENTIA Registered Trademark 6344592 Better Brain Nation Registered Trademark Care Network America Trademark 5584402 D/S Registered Trademark - Image 4955368 Dementia Answers Registered Trademark 6291328 Dementia CARER Registered Trademark 6381380 Dementia Diplomat Registered Trademark Dementia QUEST Trademark - Image 5594466 Dementia QUEST Registered Trademark 5039728 Dementia SMART Registered Trademark 5901332 Dementia Society of America Registered Trademark 4508436 Dementia Society of America Registered Trademark 5480645 Ginny Gives Registered Trademark KeepSafe iD Trademark 4563268 Know Dementia Registered Trademark Operation KeepSafe Trademark 5481165 Raise Hope Now Registered Trademark 5103842 STEP2RAISE Dementia & Brain Health Registered Trademark The Cognitive Action Plan Registered Trademark The Cognitive Action Plan Registered Trademark 6430198 The Dementia Action Plan Registered Trademark 5962769 The Dementia Action Plan Registered Trademark Wanderlert Trademark 4922886 We Know You Matter Registered Trademark 6311867 iD Registered Trademark

  • Directories | Dementia Society of America®

    Need help with dementia care? Access directories of services, support groups, clinical trials, and resources for those affected by dementia. Directories When you need someone to help you and/or your loved ones deal with Dementia, start with a doctor(s), and then look to find caregivers, care agencies, facilities, and other Dementia professionals. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents herein are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis, or treatment. DSA does not endorse any of the resources listed herein or within separate sites linked to. The information contained within these directories is considered reliable but is not guaranteed to be accurate. It is primarily compiled from providers' descriptions of their services, as well as other public data sources, and is subject to change without further notice. The links below will open website directories in a separate web browser page so that you can keep your place here. United States Administration on Aging- Eldercare Locator. Find Doctors- Use "Dementia" in HealthGrades search box. U.S. News & World Report Nursing Home Ratings. Long-Term Care Ombudsman Resource Center. Family Caregiver Alliance- Find Local Caregivers. Dementia Answers ® Directory. Lotsa Helping Hands- Create a Support Network. African-American Dementia and Wellness Organization. American Association for Medicare Supplement Insurance. Program of All-Inclusive Care for the Elderly (PACE®). Dementia Friendly America Community Locator. Memory Cafe Directory - United States & Canada. National Hospice & Palliative Care Organization. National Association for Home Care & Hospice. National Academy of Elder Law Attorneys. National Association of Estate Planners. National Adult Day Services Association. National Society of Genetic Counselors. CareLike Community Resource Locator Special Needs Trust Management. Find Geriatric Care Managers. CarFit- Find Local Program. Meals on Wheels Locator. Medical ID Bracelets . Free Medical ID Card - PDF-fillable Go back to Education | Click Here

  • Donate to Demenita Awareness | Dementia Society of America®

    Our programs bring much-needed education, local resources, and life enrichment to individuals and families impacted by Dementia. Donate today! Ways to Donate Click on any of the links below to learn more, or donate... Donate by Check- get our mailing address & check the donation form. Donate Online - use your credit or debit card to contribute. Create a Facebook Fundraiser Use PayPal to donate. Venmo @DementiaSociety Text "GiveNow" to 707070. Use Bitcoin to donate crypto: BTC, ETH, LTC & more. Network For Good- donate through this platform. CharityProud - donate through this platform. Use JustGiving.org to donate or fundraise. Combined Federal Campaign #68147. Donate Stock Use your Donor Advised Fund at Schwab, Fidelity, or BNY Mellon. Make a Lasting Legacy through your Will , Estate Planning, Insurance. Classy.org- create an Event, Group, or Peer-to-Peer fundraiser. Employer matching donations. Create party invites through eVite and add a donation option. Give with Bing- use Bing as a search engine & Microsoft donates. Donate cars- trucks, boats, RVs, and more. eBay- you can sell your items to benefit the Dementia Society. Shop online with iGive at 1,500+ retailers like Macy's & more. Use the PayPal Giving Fund platform to donate. Use GoodWorld's #donate on Twitter to donate. Donate through the EverLoved.com platform. Value Guide for Donated Goods. IRS Form Info for non-cash donations over $500. Anchor 1 Dementia Society, Inc., doing business as Dementia Society of America, is a nonprofit organization incorporated in the Commonwealth of Pennsylvania and registered with the IRS as a nonprofit 501(c)(3). Your contribution is tax-deductible to the fullest extent permitted by law. Please consult your tax advisor. Please view our IRS Determination Letter here. Back to Donate

  • Dementia Help

    The Dementia Society offers essential support, resources, and guidance for people living with dementia, as well as their families and caregivers. What Is Dementia? Dementia is a collection of symptoms resulting from certain brain disorders in which two or more functions are significantly impaired, such as memory and language skills. Experts believe that many factors contribute to Dementia, and it often presents as a combination of progressive symptoms affecting personality, behavior, memory, language, mood, and motor skills. DONATE Learn More What Dementia Is Not Dementia is not a specific disease; it is a syndrome . Rather, it describes a wide range of medical conditions that affect the brain, including Alzheimer’s disease (AD), Vascular Dementia, Lewy Body Dementia, Frontotemporal Dementia (FTD), Huntington’s disease, and Creutzfeldt-Jakob disease, and more. Dementia is not characterized by memory loss alone. While it is one of the common symptoms of Dementia, memory loss by itself does not indicate Dementia. Healthcare providers may diagnose Dementia if two or more brain functions are significantly impaired without loss of consciousness, and if there is a decline in cognitive performance over time. Dementia is not widely considered a “normal” part of aging. While mild changes in cognition are common as people mature, Dementia can cause a severe disruption in daily life and functioning. While certain conditions can masquerade as Dementia and may be treatable, the pathologies that cause Dementia are not considered curable. While no cure exists for Dementia today, several symptom management techniques are available for consideration, including medications, non-medical therapies, and even alternative medicine. Types of Dementia As referenced in this useful Dementia help infographic , the major types of Dementia include: Alzheimer’s disease (AD) – A progressive brain disorder that typically begins slowly, destroys short-term memory and other mental functions Vascular Dementia (multi-infarct) – The loss of cognitive function caused by multiple mini-strokes Lewy Body Dementia (LBD) – A progressive condition that is sometimes accompanied by hallucinations that may cause a decline in reasoning, mobility (slight tremors, falls), and function due to damaging microscopic deposits on the brain. Frontotemporal Degeneration (FTD) – An umbrella term for brain disorders that affect the nerve cells in the frontal and/or prefrontal lobes, causing the lobes to shrink, which most affects executive functions like decision making. Traumatic Brain Injury (TBI) – A disruption of brain function usually caused by a violent blow, bump, or jolt of the head (concussion). Wernicke-Korsakoff Syndrome (WKS) – A neurological disorder caused by a deficiency in thiamin (vitamin B1). Creutzfeldt-Jakob disease – A rapidly degenerative brain disorder, experts believe, caused by an abnormal isoform of a cellular glycoprotein called prion protein. Huntington’s disease – A rare and inherited condition that causes a breakdown of the brain’s nerve cells, triggering movement, cognitive, and psychiatric symptoms. Multiple Sclerosis (MS) – A brain and spinal cord disease where the immune system attacks the protective covering of nerves, disrupting communication between the brain and body. AIDS Dementia complex – A loss of mental skills in people with late-stage AIDS affecting thinking, reasoning, learning, understanding, and moving. Chronic Traumatic Encephalopathy (CTE) – A neurodegenerative disease thought to be caused by repeated concussions Contact Us to Learn More The First Stages of Dementia While initial Dementia symptoms are unique to each person, a few of the early signs can include: Short term memory loss Normal daily activities become difficult May lose the ability to solve problems May be unable to control emotions Personality changes Agitation Desires to "go home" or leave their house May see things that aren’t there Repeating questions Inability to retrace steps Frequently misplacing items Forgetting the functions of everyday items Difficulty remembering the names of objects or close relatives As the condition progresses, people living with Dementia may experience personality changes and behavioral challenges, such as delusions and hallucinations. For additional Dementia help, consult your doctor or medical specialist to understand symptoms and behaviors unique to one's specific situation. How to Help Someone With Dementia If you’re helping to care for a person living with Dementia, there are many tips and resources to guide your journey. The following are a few helpful suggestions for how to care for someone with Dementia: Learn post-diagnosis steps. Reference the practical steps we outlined in this infographic on Dementia help after diagnosis, including getting a written diagnosis, considering a second opinion, and creating a plan of care. Make it legal. If you are responsible for a loved one’s care, ensure you have the proper legal rights to do so by becoming the designated Power of Attorney (POA), conservator, or guardian. Educate yourself on the diagnosis. Learn as much as you can about the diagnosis to help you understand the person living with Dementia with compassion and empathy. These health information links and brain health resources may also help shed light. Think about the future. Determine the amount and type of long-term care your loved one will need, such as a caregiving service or assisted living facility, and begin researching the options early so that you’re prepared. Reference free online training resources. Look to Dementia help organizations such as the Dementia Society, UCLA, Morningside Ministries, and the Johns Hopkins School of Nursing, which provide free online videos, education, and training for caregivers of people living with Dementia. Make the home safe. Make the home environment D ementia-friendly with simple adjustments to noise levels, lighting, color schemes, labeling, safety measures to prevent accidents, etc. Rely on routines. Develop and adhere to predictable routines to help reduce confusion and frustration. Use technology. Helpful Dementia technologies can bring joy to a person you know, living with Dementia. Browse our award-winning S.M.A.R.T. winners, including SingFit™ for music health, the SafeWander device, and Joy for All Companion Pet toys. Communicate with care. When talking to a parent or loved one living with Dementia, use their name to get their attention, offer simple phrasing with short sentences, and take care not to talk to them as if they were a child. Use patience and compassion. Be patient by allowing plenty of time to speak to avoid startling, confusing, or agitating, and avoid correcting things they may not remember correctly. Follow medical advice. Adhere to your loved one’s healthcare provider’s advice for daily exercise and activities, dental care, nutrition, bathing and skincare, and medications. Get a DSA Aware & Share card. Request a complimentary Aware & Share Card that you or your loved one can present to people in hotels, restaurants, hospitals, stores, and elsewhere to quietly request extra TLC for communicating with respect and dignity. Contact Us to Learn More Help for Caregivers of Dementia Patients When you’re caring for someone with Dementia, it’s essential to seek support to help take care of you, too. The following are just a few of the resources and suggestions that offer helpful caregiver support, programs, services, and resources. Local and national Dementia help organizations Local Area Agency on Aging chapters Dementia Society of America® Family Caregiving Alliance National Center on Caregiving Dementia Help Support Groups Support groups can help you form friendships, find advice, gain control and empowerment, and enhance your role as a caregiver. There are several in-person and online memory caregiver support groups specifically designed to connect caregivers of Dementia patients, including: Memory People Dementia Caregivers Support Group The Purple Sherpa Basecamp Dementia Caregivers Support Group Caring for a Spouse with Dementia Dementia Unplugged Dementia Help Workshops, Webinars, & Media The following in-person Dementia help seminars and online webinars provide people living with Dementia and their family and caregivers with helpful tools and information. Workshops The Dementia Action Plan - 7 Steps to Take in the Face of Dementia™ Presented by founder and nationally recognized spokesperson, Kevin Jameson, this approximately one-hour Dementia help seminar covers what you know when dealing with Dementia in the short- and long-term. It includes an outline of seven simple steps detailed in the straightforward C.Y.P.R.E.S.S. Steps™ to empower you to successfully navigate life as a caregiver/partner or person living with Dementia, no matter the challenges that may lie ahead. The Cognitive Action Plan - 10 Building Blocks to Better Brain Health™ Presented by founder and nationally recognized spokesperson, Kevin Jameson, this approximately one-hour life-changing Dementia help seminar covers interventions that may be the building blocks of better brain health. Citing international science-based studies, Kevin details and explains in lay terms his F.O.U.N.D.A.T.I.O.N. Findings™, and the positive actions you can take to increase the likelihood of mitigating the effects of aging, disease, and decades-old lifestyle choices. Media Find dozens of helpful Dementia videos available on our YouTube channel at no cost. Covering topics including Dementia & Brain Health Quickies™, Brain Health Awareness, you and your loved ones can access these Dementia help resources right now from the comfort of your home. Peruse our curated reading list of books on Dementia help that can offer hope, inspiration, and opportunities to better understand and cope. Find additional media on our website, including films and documentaries. Webinars Dementia Unplugged™ You may also find online resources such as the Dementia Unplugged webinars helpful. Developed in cooperation with Jeannine Forrest, Ph.D., R.N., these monthly educational and conversational sessions are designed to help people who live with Dementia continue to lead meaningful lives through education and support of their care-partner. Dementia Help Directories For help finding a Dementia healthcare provider, caregiver, agency, facility, or another Dementia professional, search our online directories to locate a resource near you. You can also find nursing home ratings, create a support network, age-in-place contractors, and more. We are your source for useful and reliable Dementia help and resources. To learn more about Dementia, our mission programs, volunteering, or requesting a memorial, please contact us today . Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis, or treatment. Contact Us to Learn More

  • Chronic Traumatic Encephalopathy

    Chronic Traumatic Encephalopathy is a progressive degenerative disease of the brain found in athletes with a history of repetitive brain trauma. Learn more. CTE Chronic Traumatic Encephalopathy (CTE) is a progressive degenerative disease of the brain found in athletes (and others) with a history of repetitive brain trauma, including symptomatic concussions as well as asymptomatic subconcussive hits to the head. CTE has been known to affect boxers since the 1920s. However, recent reports have been published of neuropathologically confirmed CTE in retired professional football players and other athletes who have a history of repetitive brain trauma. This trauma triggers progressive degeneration of the brain tissue, including the build-up of an abnormal protein called tau. These changes in the brain can begin months, years, or even decades after the last brain trauma or end of active athletic involvement. The brain degeneration is associated with memory loss, confusion, impaired judgment, impulse control problems, aggression, depression, and, eventually, progressive Dementia. Page Source: click here . Concussion Legacy's Suspected CTE Caregiver Guide: click here. Centers for Disease Control's CTE information: click here. Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

  • Wernicke Encephalopathy/Korsakoff Syndrome

    Wernicke encephalopathy and Korsakoff syndrome are different conditions. Both are due to brain damage caused by a lack of vitamin B1. To learn more, contact us. WKS "Wernicke encephalopathy and Korsakoff syndrome are different conditions. Both are due to brain damage caused by a lack of vitamin B1. Lack of vitamin B1 is common in people with alcoholism. It is also common in persons whose bodies do not absorb food properly, as sometimes occurs with a chronic illness or after obesity surgery. Korsakoff syndrome, or Korsakoff psychosis, tends to develop as Wernicke symptoms go away . Wernicke encephalopathy causes brain damage in lower parts of the brain called the thalamus and hypothalamus. Korsakoff psychosis results from permanent damage to areas of the brain involved with memory. Symptoms of Wernicke encephalopathy [Dementia] include: Confusion and loss of mental activity that can progress to coma and death ; loss of muscle coordination that can cause leg tremor; vision changes such as abnormal eye movements; double vision; eyelid drooping; alcohol withdrawal; inability to form new memories; loss of memory can be severe; making up stories; seeing or hearing things that are not really there. Other conditions that may cause vitamin B1 deficiency include: AIDS, cancers that have spread throughout the body, extreme nausea and vomiting during pregnancy, heart failure, long periods of intravenous (IV) therapy without receiving thiamine supplements, long-term dialysis, very high thyroid hormone levels." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here

  • Dementia Society of America® | Health Information

    If you or someone you know has been diagnosed with Alzheimer’s disease. Dementia Society of America® is the place where you can find reliable sources. Health Information Links The United States government and leading Non-Governmental Organizations (NGOs) create an abundance of health advice and Dementia statistics. When you or someone you know has been diagnosed with Alzheimer’s disease or another form of Dementia, it’s important to find reliable sources of information and trials. Dementia Society of America can point you to many of these resources. The resource list below offers a wide range of information; including a helpful guide on physical and mental fitness for older adults. On this page, you will find resources from the National Institutes of Health, WHO, and many other leading organizations. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. The links below will open websites in a separate web browser page so that you can keep your place here. Antidote- Dementia Clinical Drug Trial Selector Be taken through a series of questions to find the trial that fits. CenterWatch- Dementia Clinical Drug Trials Database Search to find trials in your area, and sign up for email alerts. National Institutes of Health- Alzheimer's Detailed epidemiology (incidence, distribution, and possible control) of Alzheimer's Disease Dementia. U.S. Department of Health and Human Services- Institute on Aging General information on U.S. government research on aging and related health issues. U.S. Department of Health and Human Services- Brain Health Info The Association for Community Living (ACL) provides a resource on brain health. World Health Organization- Dementias Fact Sheet A global Dementia fact sheet produced by a branch of the United Nations. Dementia Prevention, Intervention, and Care- Commission The Lancet is an independent, international weekly general medical journal founded in 1823. The journal strives to make science widely available so that medicine can serve and transform society and positively impact the lives of people. Brain Bank Donation- Locator If you wish to help others through Dementia research, consider giving the gift of your brain to science when you die. CDC- Dementia Care Community Statistics The U.S. Department of Health and Human Services' Centers for Disease Control (CDC) has prepared a statistical overview (2010) of care communities across America. CMS- Center for Medicare & Medicaid Services If you have a complaint to make about care for someone living with Dementia who is a resident of a state or federally-certified healthcare facility, you can find the appropriate state contact phone number and web address here. Go back to Education | Click Here

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