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  • Dementia May Affect Motor Skills

    There is accumulating evidence that Dementia has a long preclinical phase that may begin years or even decades before a clinical diagnosis. 1 In addition, data indicating the preclinical signs of Dementia and declines in memory and other cognitive skills also include motor skill difficulties. It is clear that the onset of Dementia may affect motor skills. It's difficult to tease out regular age-related changes in coordination and balance from those motor skills that put people at increased risk for Dementia. Measures of preclinical impairments include changes in gait and walking speed, loss of muscle mass and strength, as well as reduced manual agility and balance. Once Dementia becomes part of the picture, friends and family members become increasingly aware of the changes in their loved one's memory and organizational skills. They may also notice their loved one has difficulty dressing or walking without assistance. Like the worsening cognition we associate with Dementia, losses in stamina and coordination also reflect more widespread brain damage. How to Adapt to Changes in Motor Skills Research shows that physical exercise plays a vital role in helping to protect, maintain, and improve the health and well-being of people in either the preclinical or the clinical stages of Dementia. As is true for everyone, physical exercises must be safe, enjoyable, and give a sense of accomplishment. However, before embarking on new or increased physical activity, you must get approval from your loved one's doctor. A physical therapist (PT) is often an excellent place to start. They can devise an exercise plan to improve stamina, flexibility, balance and exercises to prevent falls. You can find information about local physical therapists on the American Physical Therapy webpage: https://www.apta.org/ . Your loved one's doctor, nurse, or medical social worker are other good sources of information. Exercise also includes walking, dancing, gardening, and (ugh) housework. All are inexpensive, do not require specialized equipment, and come with the satisfaction of having done something worthwhile. As an added benefit, all of these, and similar activities, are sources of social and cognitive stimulation. Exercise also includes activities that improve small or fine-muscle motor skills. The ability to button a shirt, open a cereal box, or use eating utensils helps people living with Dementia maintain their independence for as long as possible. An occupational therapist (OT) can suggest helpful exercises and adaptive equipment that can make it possible to live at home for as long as possible. Go to The American Occupational Therapy Association webpage to learn more about occupational therapy and the many ways occupational therapy can help people who have dementia: http://www.aota.org/About-Occupational-Therapy.aspx . Small muscle exercises include pastimes such as craft projects, scrapbooking, baking, working with clay, painting, and drawing. These simple, inexpensive small muscle activities encourage socialization and maintain or improve cognition. An added benefit, and perhaps the most important one, is making things to share with others creates mementos of a life together and affirms the whole person. Reference 1.Buchman AS and D Bennett. Loss of Motor Function in Preclinical Alzheimer's Disease. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3121966/ . Access; September 25, 2016. Contributor: Janet Yagoda Shagam, PhD, is a freelance medical and science writer and the author of “ An Unintended Journey: A Caregiver's Guide to Dementia.” Available through Amazon . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Ditch The Bedroom TV

    Falling asleep and staying asleep are incredibly important for brain health and cognitive function. Sleep may be affected by specific causes of Dementia, but in addition, some studies show that poor sleep might actually contribute to the development of a Dementia. Many people struggle with getting adequate sleep due to various factors, including stress, activity level, and poor sleep hygiene. Electronics have found their way into many aspects of modern life. Adults and children have more access to LED screens and electronic entertainment today than at any other time in history. While many of these tablets, smartphones, and TV screens can improve the quality of communication, they can also negatively impact your brain health. The Nielsen organization reports that, on average, adults watch 33 hours per week, while children average 24 hours. Most of this viewing time occurs in the evening hours, shortly before bed, or while lying in bed before trying to go to sleep. When you’re watching a television program, it engages the brain. You can often find yourself reacting to the program, formulating questions about what will happen next, or even emotionally reacting to what’s on the screen. When this happens, it often results in the brain releasing stress hormones like adrenaline and cortisol, which stimulate the body and continue to keep the brain engaged. You start to set up a cycle in your brain that encourages it to stay awake and alert at precisely the same time that it’s supposed to be calming down to prepare for sleep. Ditch the Bedroom TV! Your bedroom should be set up as an environment that is conducive to getting a good night’s sleep. Removing the TV from your bedroom removes unneeded stimulus. Going to sleep each night in a positive sleep environment trains your brain to recognize the timing and routine of the sleep-wake pattern. This allows you to fall asleep more quickly and stay asleep throughout the night. This can also be a significant factor in reducing your dependency issues regarding sleep aids and medications. Contributor: Dr. Michael Trayford is a Board-Certified Chiropractic Neurologist and Founder of APEX Brain Centers in Asheville, NC. For more information, please visit https://apexbraincenters.com/cognitive-decline-asheville-nc/ . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Take Time to Reply

    This brain health tip is as much about quality communication as it is about stress management. On the surface, taking time to reply to emails or other communications is about giving yourself time to formulate your thoughts so you can speak intelligently and get your point across. Take Time to Reply This can be a challenge in some situations, mainly if there’s an emotional charge to the topic or another factor that might tempt you to overreact. You need time, or a refractory period, to allow your brain to sort things out, create a reasonable understanding, and, hopefully, reply with an unbiased, non-confrontational opinion. If the topic is complex or emotionally charged, you might want to ask a neutral party you trust to help you formulate your response. This sounding board helps you ensure you’re clear and respond appropriately. While this tip primarily applies to email correspondence, there are a lot of other communication methods and social media outlets where it is also applicable. Texting can be particularly prone to miscommunication glitches as you’re forced to respond often in short detail so that it conforms with the speed with which we tend to fire off texts. This easily allows things to be misconstrued or misunderstood, or it could cause the other person to respond in an inflammatory manner. This is particularly important in the Dementia and cognitive realm decline as social cues are often necessary to put the communication into proper context so it is not misunderstood. Most people can get their point across with adequate clarity regarding business communications or communicating information in a dry or technical manner. As a general rule of thumb, if something is emotionally charged or controversial, it’s a good idea to take the time to sit back, relax, and think about it. There may be a big difference in how you feel if you sleep on it. People don’t always need answers right away. I think you will find that, in many cases, you will serve yourself and the person you’re communicating with at a much higher level if you allow yourself the time to reflect on what you will write. Sometimes, you might not even need to reply at all! Contributor: Dr. Michael Trayford is a Board-Certified Chiropractic Neurologist and Founder of APEX Brain Centers in Asheville, NC. For more information, please visit https://apexbraincenters.com/cognitive-decline-asheville-nc/ . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Take Into Consideration: POA and Legal Matters

    POA and Legal Matters There are many legal matters you must attend to before you or another person can be an effective caregiver/care partner. Two of the most important ones are becoming your loved one’s Power of Attorney (POA) and, when warranted, his or her guardian and conservator. In addition, your loved one should have already composed and signed his or her advance directive, do not resuscitate (DNR) instructions, and his or her will. Competency is one of those hard-to-define words. Most people realize that competency has something to do with understanding information and performing tasks to an acceptable level. But what about competency as it applies to people who have Dementia? To evaluate competency, healthcare professionals and lawyers consider the specific skills or tasks the patient needs to perform. A power of attorney is a legal document that states your loved one voluntarily gives you the right to act on his or her behalf. Since only competent individuals can grant power of attorney, it is vital to have a POA in place well before the need arises. People with early-stage Dementia often do have the capacity to make decisions and, therefore, can sign the power of attorney papers. If you are the designated POA, you can converse with your loved one’s doctor and other healthcare providers. Without POA papers, you cannot pay your loved one’s bills, make banking transactions, sign income tax returns, or speak with credit card, insurance, and cellphone representatives. Guardian and conservatorship are necessary when your loved one has neither been assigned as his or her POA nor is competent to do so. Guardians are responsible for their loved one’s safety, food, clothing, and shelter. Conservators are responsible for paying bills and managing and protecting property and financial assets. Most often, the person who is the guardian is also the conservator. The guardian and conservatorship process is expensive, lengthy, and emotionally draining. Becoming your loved one’s guardian or conservator requires the services of several lawyers, a court petition, and a court hearing. An advance directive or living will, is a document that outlines your loved one’s end-of-life wishes in the event he or she becomes mentally or physically incapacitated. The advance directive states the conditions where he or she may or may not want tube feeding, cardiopulmonary resuscitation (CPR), or other artificial life-sustaining measures. Your loved one can appoint you or another person, to make these end-of-life decisions. In case of a heart attack, stroke, pneumonia, or another life-threatening condition, resuscitation instructions are another aspect of the advance directive. A DNR is the abbreviation many people use instead of stating “do not resuscitate.” Often, doctors, hospitals, and long-term care facilities will not admit or treat patients who do not have a living will on file. Then, you, as his or her POA or guardian, must make those difficult decisions. Writing and modifying the will is another topic that involves competency. Suspicions of coercion can pit family members against one another. As with all essential documents – keep records, make copies to use when an original is unnecessary, AND inform need-to-know individuals where and how to access these critical papers. To find an attorney specializing in elder law, consider this organization, the National Academy of Elder Law Attorneys and their "Find a Lawyer" directory or our Dementia Answers Directory . Contributor: Janet Yagoda Shagam, PhD, is a freelance medical and science writer and the author of “ An Unintended Journey: A Caregiver's Guide to Dementia.” Available through Amazon . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Do Something You Enjoy!

    Exercise is critically important for brain health and vitality. One of the keys to establishing a consistent exercise routine is to develop a mindset of making the time rather than trying to find the time. Of course, there are a lot of facets involved in exercise selection and location. Plus, you must check with your doctor before beginning a physical activity outside your daily routine. For many, when they think about exercise, they think about going to go to the gym. It is estimated that over 60% of people with a gym membership either fail to use it at all or use it so infrequently that it imparts no long-term health benefits. While some people enjoy going to the gym, and gyms serve a great purpose, most people see it as something they have to do instead of something they want to do. That’s not necessarily a good place to be because pulling yourself away from doing other things you like (e.g., hiking, canoeing, birdwatching, etc.) can create stress in your life. So, in a particular light, you could view this as a stress management tool. Do Something You Enjoy Instead Choosing exercises and activities that you like to do increases the odds that you will stay dedicated to keeping exercise as a planned part of your daily routine. The way to succeed is by doing something you love to do. For some people, this might mean exercising in nature, even gardening ; for others, it might be something simple like taking the family out for a long walk through the neighborhood. There are added benefits to these types of activities in the different ways they stimulate the brain. Bending, stretching, as able, and moving plants around seems low-impact, but if you've not done it for a while, start slowing. Exercising in nature, however, promotes your awareness and sense of place. Walking through the neighborhood creates opportunities for social interaction when you catch up with neighbors and friends you meet along the way. Doing something you want to do is critically important because it provides more than just the exercise. It offers a host of tools that will also help to train your brain positively. Motivation enhances learning. This makes it much easier to develop a habit when it’s something that you love to do. Contributor: Dr. Michael Trayford is a Board-Certified Chiropractic Neurologist and Founder of APEX Brain Centers in Asheville, NC. For more information, please visit https://apexbraincenters.com/cognitive-decline-asheville-nc/ . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Four Ways to Create a Positive Space for Those with Dementia

    When 77-year-old Anne (pseudonym) was diagnosed with Dementia, her family wanted to keep her engaged in art. After all, she was a successful abstract artist for decades, so why stop now? Her family expected her to use the art studio in her condo–which was full of all sorts of supplies–like she previously did, but that didn’t happen. “ The family didn’t understand how they needed to help with cueing and getting [Anne] engaged,” says Jeannine Forrest, Dem entia care coach and advisory council member for Dementia Society of America ® . “We coached the family about how to bring out just a few art supplies at a time,” among other tips. Anne’s husband, who is also her caregiver, turned on her favorite opera music in the background and created art with her. Once a solo activity, it soon became something they enjoyed together. “What was wonderful was that they both had meaningful and positive [experiences] within this environment,” says Forrest. “Her husband’s face just lit up being able to bring out that light in her that used to make her shine.” A positive atmosphere is essential for everyone, especially individuals living with Dementia. It’s a space where people “feel empowered, respected, and as if they have choice and purpose,” explains Forrest. Here are 4 ways to create a positive space for those living with Dementia: 1. Think beyond the physical space. When Forrest thinks of the environment, she considers two areas: inner and outer rings. The inner ring, which is the people, is just as important as the outer ring, the physical space. The people include whoever is caring for and/or interacting with a person living with Dementia. Those individuals should be well informed that the person’s brain is changing, says Forrest. It’s more than memory loss. Some of the 22 common signs and symptoms include poor judgment, difficulty with senses, heightened anxiety, and more. With that information in mind, individuals should have a willingness to learn how to adapt to those changes and communicate in different ways. For example, a person should always aim to use language that is empowering and uplifting, not stigmatizing. 2. Create safe, organized rooms. Regardless of where a person living with Dementia is living–at home, a care facility, or elsewhere–it’s important to prioritize safety and organization. Ensuring safety for everyone is paramount. This involves removing potential fall risks, such as throw rugs or cords. Organization is key too. Avoid cluttering the space with piles of books and other objects. When the space is too busy, it can be overstimulating and distracting, especially for someone whose brain is changing. 3. Add wayfinding signs. One easy way to give choice and dignity to people living with Dementia is through wayfinding signs. It’s common for individuals with Dementia to get lost in familiar places. Or perhaps they’re in a new place, and all the doors look the same. That’s when physical signs can be incredibly helpful. Wayfinding signs have “not only the word but a picture of the toilet and the washroom [for example], so that the person who is living has Dementia can walk by and identify where they are,” says Forrest. 4. Incorporate homelike objects. The main spaces where a person living with Dementia spends most of their time should be cozy and homelike. While this comes more naturally in a person’s home, it’s certainly possible to achieve in a care community. Forrest suggests adding familiar objects, such as photos and other mementos, that bring the person joy and comfort. While this is important, Forrest emphasizes that a beautiful, high-end environment will not make up for a poor inner ring. “It’s more than the physical space. That’s part of it, but that’s not what makes the difference in terms of quality time and quality of life,” says Forrest. “It is the people who interact in that space, that inner ring, that makes all the difference in the world.” Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Vascular Dementia Care: Understanding The Unique Challenges And How To Overcome Them

    Vascular Dementia (VaD) is a type of Dementia caused by reduced blood flow to the brain, leading to cognitive decline and impairment. Understanding the unique challenges that arise in caring for individuals with Vascular Dementia is crucial for providing practical support and improving their quality of life. This blog aims to explore the specific challenges caregivers and healthcare professionals face in managing Vascular Dementia and provide valuable insights and strategies to overcome these challenges. From navigating cognitive changes and addressing behavioral symptoms to optimizing lifestyle interventions and accessing appropriate resources, this blog is a comprehensive resource for anyone caring for individuals with VaD. What is Vascular Dementia? Vascular Dementia is a type of Dementia characterized by cognitive impairment and memory loss that occurs due to reduced blood flow to the brain. It is typically caused by damage to the blood vessels supplying oxygen and nutrients to the brain, leading to the death of brain cells. The most common cause of Vascular Dementia is a series of small strokes known as Multi-Infarct Dementia. Other causes include large strokes, small vessel disease, and conditions that affect the blood vessels, such as high blood pressure and diabetes. What sets Vascular Dementia apart from other forms of Dementia What sets Vascular Dementia apart from other forms of Dementia, such as Alzheimer's disease, is its underlying cause. While Alzheimer's disease is characterized by the presence of abnormal protein deposits in the brain, Vascular Dementia arises from problems with blood flow and vascular damage. This critical distinction is vital in diagnosing and managing the condition effectively. Symptoms of Vascular Dementia Symptoms of Vascular Dementia can vary depending on the extent and location of the brain damage. Common signs include difficulties with memory, problem-solving, and concentration, as well as mood swings, confusion, and impaired judgment. The progression of Vascular Dementia can occur stepwise, with noticeable declines following each stroke or vascular event. It is essential to differentiate Vascular Dementia from other forms of Dementia to provide appropriate treatment and support. Proper diagnosis involves comprehensive medical evaluations, including medical history, cognitive assessments, brain imaging, and examination of blood vessels. By understanding the distinct characteristics and causes of Vascular Dementia, healthcare professionals can tailor care plans and interventions to address the specific challenges associated with this form of Dementia. Unique Challenges in Vascular Dementia Care Caring for individuals with Vascular Dementia poses several unique challenges due to the nature of the condition. Recognizing and addressing these challenges is crucial for providing effective care and support. Here are some of the key challenges commonly encountered in Vascular Dementia care: Rapid onset and progression of symptoms : Unlike some other forms of Dementia, Vascular Dementia can have a sudden onset and progress rapidly, primarily if caused by a stroke or multiple small strokes. This rapid decline in cognitive abilities can be challenging to manage and may require prompt adjustments in care plans. Fluctuating cognitive abilities : Vascular Dementia is often characterized by cognitive fluctuations, where individuals experience periods of relative clarity interspersed with periods of confusion or cognitive decline. These fluctuations can be challenging to predict and manage, requiring flexibility and adaptability in care approaches. Physical health issues and comorbidities : Vascular Dementia commonly coexists with other health conditions, such as high blood pressure, diabetes, or cardiovascular disease. Managing these comorbidities and addressing physical health issues is integral to vascular Dementia care, as they can significantly impact overall well-being and cognitive function. Emotional and behavioral changes : Vascular Dementia can lead to emotional and behavioral changes, including depression, anxiety, agitation, irritability, and impulsivity. These changes can be distressing for both individuals with Dementia and their caregivers, requiring strategies to manage and support emotional well-being. Impact on caregivers and family members : Caring for someone with Vascular Dementia can be emotionally and physically demanding for family members and caregivers. They may face challenges in navigating the complexities of the condition, dealing with cognitive fluctuations, managing behavioral changes, and balancing caregiving responsibilities with their own well-being. Overcoming the Challenges: Practical Strategies While caring for individuals with Vascular Dementia comes with unique challenges, there are practical strategies that can help overcome these hurdles and provide effective care and support. Here are some key strategies to consider: Early diagnosis and intervention: Early detection of Vascular Dementia is crucial for implementing appropriate interventions and treatments. Timely diagnosis allows for managing underlying medical conditions, such as high blood pressure or diabetes, which can help slow the progression of Vascular Dementia and optimize cognitive function. Creating a supportive and safe environment : Modifying the living environment to promote safety and independence is essential. Remove hazards, ensure adequate lighting, and consider assistive devices to support mobility. Simplify daily routines and provide visual cues to assist with memory and orientation. Managing medications and medical conditions: Proper medication management is vital in Vascular Dementia care. Ensure medications are taken as prescribed and monitor for potential interactions or side effects. Managing other medical conditions, such as hypertension or diabetes, through regular check-ups and adherence to treatment plans can also support overall well-being. Promoting cognitive stimulation and engagement : Engaging individuals with Vascular Dementia in cognitive activities can help maintain cognitive function and enhance overall well-being. Encourage participation in hobbies, puzzles, memory games, or activities that tap into their interests. Regular mental stimulation can slow cognitive decline and improve quality of life. Emotional support for the individual and caregivers : Emotional support is essential for both individuals with Vascular Dementia and their caregivers. Encourage open communication, provide reassurance, and offer opportunities for emotional expression. Support groups or counseling services can be valuable resources for caregivers, providing a platform for sharing experiences and coping strategies. Utilizing community resources and support networks : Tap into community resources and support networks to access additional assistance. Dementia support organizations, respite care services, and adult day programs can provide relief for caregivers while offering social engagement and support for individuals living with Vascular Dementia. Communication and Connection Effective communication is vital when caring for individuals with Vascular Dementia as it helps maintain connection, understanding, and overall well-being. Here's why communication is important and some tips for improving communication and fostering a connection with individuals with Vascular Dementia: Tips for improving communication and maintaining connection: a. Use clear and simple language : Use short, simple sentences and speak slowly, allowing time for processing and comprehension. Avoid complex or abstract concepts. b. Non-verbal cues: Pay attention to non-verbal cues such as facial expressions, gestures, and body language. Maintain eye contact and use touch, when appropriate, to convey warmth and reassurance. c. Active listening : Be present and attentive when the person with Vascular Dementia communicates. Give them ample time to express themselves and avoid interrupting. Show empathy, understanding, and patience. d. Be mindful of your tone and demeanor : Maintain a calm and positive tone of voice, as individuals with Dementia can pick up on the emotions and attitudes of others. Show respect and avoid being condescending or dismissive. e. Use visual aids and cues : Visual aids, such as pictures, written notes, or memory aids, can assist in conveying information and promoting understanding. Pointing to objects or using gestures can help with comprehension. f. Engage in meaningful activities : Plan and engage in activities that the person living with Vascular Dementia enjoys and can participate in comfortably. This could include listening to music, looking at photo albums, doing simple crafts, or taking gentle walks. Self-Care for Caregivers Recognizing the importance of self-care is essential for caregivers of individuals with Vascular Dementia. Caregiving can be demanding and emotionally challenging, and neglecting one's own well-being can lead to burnout and decreased effectiveness in providing care. Here are some practical self-care strategies for caregivers: Prioritize self-care: Make self-care a priority and acknowledge that taking care of yourself is crucial for your own well-being and the quality of care you provide. Recognize that it is not selfish to take time for yourself. Set boundaries and ask for help : Establish clear boundaries to protect your own physical and mental health. Recognize your limitations and ask for assistance when needed. Seek support from family members, friends, or support groups to share the caregiving responsibilities. Take breaks and practice relaxation techniques : Schedule regular daily intervals to recharge and relax. Engage in activities that bring you joy, such as hobbies, exercise, reading, or spending time in nature. Maintain social connections: Stay connected with your support network and maintain social connections. Reach out to friends, attend social events, or find others to share experiences, receive emotional support, and gain valuable insights from others who are going through similar experiences. Seek professional support : Don't hesitate to seek professional support when needed. Therapists, counselors, or support services specialized in caregiver support can provide guidance, coping strategies, and a safe space to express your feelings and concerns. Conclusion For further information and resources on Vascular Dementia and caregiving, we recommend contacting the Dementia Society or other Dementia-focused organizations. These organizations offer valuable support, educational materials, and guidance to caregivers and individuals affected by Vascular Dementia. Remember, you are not alone on this journey. By staying informed, seeking support, and practicing self-care, you can make a positive difference in the lives of those living with Vascular Dementia while maintaining your own well-being. Together, we can navigate the challenges of Vascular Dementia care and provide the best possible care for our loved ones. Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • May is Dementia Awareness Month

    Awareness and education are the first steps to understanding Dementia. Dementia is a complex syndrome that affects millions of individuals worldwide, as well as their families and caregivers. In the United States, the Dementia Society of America (DSA) has emerged as a prominent organization that raises awareness and supports those affected by Dementia. With its unwavering commitment to education, awareness, and community engagement, DSA is vital in empowering individuals living with Dementia and fostering a more inclusive society. This article will explore five aspects of the Dementia Society's mission, initiatives, and impact. Understanding DSA and Its Mission : The Dementia Society of America is a national nonprofit 501(c)(3) organization celebrating 10 years of improving the lives of individuals living with Dementia, their caregivers, and their families. Its mission is to enhance the quality of life for those affected by Dementia, support research efforts, and advocate for the needs of this vulnerable population. Education and Awareness Programs : Education is vital to the DSA's work. The organization offers a wide range of educational programs and resources designed to increase awareness and understanding of Dementia. Through workshops, conferences, webinars, and community outreach, DSA equips healthcare professionals, caregivers, and the general public with the knowledge and tools necessary to provide practical support and care for individuals living with Dementia. DSA's educational outreach promotes Dementia awareness among students and fosters a compassionate and inclusive society. By educating future generations about Dementia, DSA aims to reduce stigma and create an environment that embraces and supports individuals affected by the condition. Support and Services : Recognizing the challenges faced by individuals living with Dementia and their caregivers, the Dementia Society of America provides various support programs. These include their 1-800-DEMENTIA® information helpline, supportive online programs, a comprehensive online website with helpful information and guidance, local resources directory , and an extensive definitions section to understand the different types of Dementia better. The organization also recognizes the importance of respite care programs that give caregivers much-needed relief, allowing them to recharge and continue providing optimal care for their loved ones. Through their Dementia Aware America™ initiative, DSA promotes Dementia education, accessibility, and grassroots changes to ensure that communities can support and accommodate individuals living with Dementia and their families. Additionally, DSA prioritizes the creation of Dementia-aware communities. By collaborating with local businesses, organizations, and concerned citizens, they work to develop environments that are accessible, safe, and inclusive for individuals living with Dementia. Research and Innovation : DSA recognizes the importance of research in advancing our understanding of Dementia and improving care practices. With cures being elusive over the past 100 years, the organization actively supports research projects and partnerships to find better treatments, interventions, and meaningful therapies for the various types and causes of Dementia. Through collaborations and partnerships, DSA believes in driving innovation within the Dementia community. Advocacy : DSA recognizes community advocacy efforts at the local and national levels to create lasting change. DSA advocates for increased funding for Dementia research, improved access to quality care and support services, and integration of "Dementia-friendly" practices in various public and private sectors. DSA joins with others to influence opinions and perspectives promoting the rights and well-being of individuals with Dementia. The Dementia Society of America is a beacon of hope for those affected by Dementia. Through its comprehensive educational programs, support services, research initiatives, and Ginny Gives Grants, the organization has made significant strides in transforming communities and improving the lives of individuals living with Dementia. By fostering awareness, understanding, and inclusivity, DSA stands at the forefront of the fight against Dementia, empowering individuals and families with hope and healing through knowledge. In recognition of the Dementia Society's National Dementia Awareness Month this May, please consider supporting the Dementia Society of America through its annual Ride Against Dementia™ Challenge on Facebook, or make a direction donation here anytime . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Start With Three Dementia Planning Strategies

    A Dementia diagnosis can be confusing and challenging, but individuals and families can feel empowered using Dementia planning strategies as they navigate their next steps. Board-certified chiropractic neurologist Dr. Michael S. Trayford and neuropsychologist Dr. Karen Sullivan give their insights into memory and cognitive care strategies for people living with Dementia, as well as their families. Strategy 1: Assemble a Care Team Once you’ve been given a proper diagnosis and a second opinion, an organized treatment plan should be on the agenda. Planning will most likely include a team of various medical specialists, your primary care physician, and your loved ones. Sullivan believes that individuals need to partner with their brain health provider so that that person can keep them up to date on clinical trials and programming that could be helpful. She believes that an extension of that plan should be a neuropsychologist. However, she’s aware that there are many more patients than neuropsychologists in the U.S. today. Nonetheless, here’s a resource to start the search . According to Sullivan, “Your neuropsychologist is your best partner for figuring out a whole-person strategy. We spend so much time getting the right diagnosis, but we must remember that this is just one part of the person's identity.” She explains that it’s important to “zoom out” and help the person living with Dementia process their diagnosis and any changes they are going through. Sullivan says that the individual themselves need to be a part of the planning, and early measures should include a living will so that loved ones won’t need to scramble or argue about the next stages. “I think patients should start documenting their preferences for future care. Dementia is a cognitive disorder, and while discussing living wills is tough, it’s important for individuals to be able to advocate for themselves while they are still able.” Strategy 2: Take Advantage of Early Interventions Trayford is the founder of APEX Brain Centers, Asheville, NC. He suggests that individuals could start a regiment of brain-healthy lifestyle changes to help slow cognitive decline. “You may not reverse a progressive pathology in the brain, but you might increase your chances of doing more for longer, whatever ‘more’ means to you and your quality of life.” Trayford continues, “The more confident we are on two feet, the more confident we are in our psychological, cognitive, and emotional processes.” Lifestyle changes should also be incorporated. He says, “These lifestyle changes could include anti-inflammatory diets, higher fat diets, or lower sugar diets for better brain function. Keeping your blood sugar in check if you have diabetes.” He also recommends that individuals keep moving - whether that means taking a walk, finding a program like Silver Sneakers® , or participating in a virtual chair yoga session. “It’s all about the important brain-body connection, and we deal with balance and cognition. Getting in tune with your physical body and if you can handle it, cardiovascular exercise needs to be a regular part of the regiment.” Sullivan says, “We're really moving towards an early and more accurate diagnosis of Dementia.” She recommends that her patients enroll in research studies early on, which might make a difference, but more importantly, doing so can help her patients feel like they are part of future treatment. There are many trials nationwide, and a great way to start looking is to use the Society's Dementia Answers® directory. Strategy 3: Live Your Life Sullivan says that when teams launch into a treatment plan, it’s easy to forget the patient’s humanness. “I have learned the importance of just being quiet for a little bit and letting the diagnosis sit there for a few minutes and giving people time and space to hear it and to process it,” she explains. She also expresses that patients don’t want to feel forgotten, “That ‘D word’ comes with stereotypes. Instead of letting the diagnosis color everything, remember that Dementia doesn’t define you.” “I really like that the Dementia Society of America® is working to represent all types of Dementia,” says Sullivan. When the stress of the initial diagnosis lessens, Sullivan says that gratitude tends to kick in. “Right now, you’re grateful to be alive and healthy, right? So I encourage people to pursue new passions, whether painting, playing music, or bird watching.” Tonya Russell is a South Jersey-based writer who specializes in health and wellness. Her words can be found in the New York Times, Washington Post, Forbes, and Prevention. Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • What's To Enjoy? Life, That's What!

    #Livestrong #DespiteDementia #DementiaSociety My older friend often says, “No matter the weather, the sky is always blue.” This does not mean he is an overly optimistic person. Instead, despite his many infirmities, he lives daily as though it is a gift. He takes pleasure in his garden, family, and friends, as well as in the slow but steady progress he makes in his sculpture studio. His response to the annoyances we all experience and the things one cannot change is a hearty Brooklyn-ese, “What evah.” The diagnosis of Dementia, though not what we wish for, is an invitation to indulge yourself in all the things that give you pleasure or might like to do. Some people call these indulgences their “bucket list.” Enjoy Your Life! Many people have spent a considerable portion of their adult lives avoiding certain types of food. Although eating a healthful diet is still essential – indulge! It’s okay to eat a decadent dessert, an entire bag of chips, or any of the other foods you crave. Travel the world with your fork, knife, and spoon. Try a new cuisine. Explore the worlds of wine, cheese, and artisan beer. Since it’s always nice to travel in the company of others – extend an invitation to a themed potluck dinner or lunch at an ethnic restaurant. Don’t limit yourself to adventurous eating. This is an excellent time to become an adventurous tourist. Go to those “I’ve always wanted to visit “places. And it doesn’t have to be anything fancy such as a trip to Iceland to see the Northern Lights. Explore your nearby surroundings with the eyes of a tourist. Living life to its fullest includes giving family and friends the gift of your time with them. And you might be surprised to discover that grocery shopping and housework affirm your independence and abilities. To paraphrase my friend’s words, “Living a full life makes every day a blue-sky day.” Enjoy life! Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • Protect Your Noggin. You're Worth It!

    #TBI #Sports #Dementia #BrainHealth At first, glance, wearing your helmet might seem like pure common sense. Unfortunately, we still see many people these days that aren’t wearing helmets when they are riding a bike, rollerblading, or involved in other outdoor activities. In my clinical work, I see many people that have suffered a mild traumatic brain injury due to not wearing a helmet in a situation where it was called for. We’re seeing everything from mild traumatic brain injury and concussion to people who have had open head injuries and lost parts of their brain because of trauma. Wear Your Helmet to Protect Your Brain Wearing your helmet is one of the simple things you can do to actively prevent or decrease the risk of suffering a significant injury to the brain. This applies to any type of wheeled sport, whether it’s a motorcycle, bicycle, scooter, or rollerblade. When you fall during one of these activities, and your legs come out from underneath you, the first thing to hit the pavement is often your head. Many agencies and organizations have collected research and statistics. This includes the insurance industry, highway, and safety divisions. The website helmets.org helps to provide a clear picture of a profile for the most likely candidates getting hurt on bicycles due to not wearing helmets. The composite profile for bicycle fatality is a sober male over 16 who is not wearing a helmet while riding on a major road as he crossed an intersection in an urban area on a summer evening when he was hit by a car. A statistic from a major U.S. city within the past decade is that 74% of fatal bike crashes involved a head injury. Of that 74 percent, a staggering 97 percent were not wearing a helmet. This is irrefutable evidence that if you want to stay alive during a bicycle crash and avoid significant head injury, you must wear a helmet. The numbers paint a very clear picture that helmets save lives. Of equal importance is that they preserve health and reduce the risk of compromised brain function. This is not to say that if you’re wearing a helmet, you won’t have some kind of brain injury. However, you are significantly reducing your odds of suffering a severe brain injury that could affect you throughout your life. It’s also worth noting that the price point for a good, solid, approved helmet only ranges between $15 to $30. Of course, the value of wearing a helmet doesn’t just extend to riding a bike or rollerblading. You should see it as mandatory for you and your family to wear them in all activities other than walking (e.g., skiing, white water sports, etc.). Protect your noggin! Check out our booklet, The Big Umbrella ™, for The Cognitive Action Plan ™. In it, you’ll find recommendations that include and go beyond protecting your head from concussions and Traumatic Brain Injury (TBI) . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

  • What Are The Differences Between Signs, Symptoms, And Clues of Dementia?

    #10signs #22clues #dementia When you have a scratchy throat, it could be a clue that you're catching a cold, but it could also be that you've been talking nonstop all day and need to hydrate yourself with water. Yet, if it progresses, you may have difficulty swallowing coupled with a burning gulp - that's a symptom. And lastly, when the doctor does a throat culture, it may prove to be a sign of infection. The words “signs” and “symptoms” are not interchangeable. Signs are measurable and observable. Examples of measurable signs include having a fever, high blood pressure, and elevated blood glucose levels. Examples of observable signs are rashes and bleeding. Some signs associated with Dementia are balance difficulties, disorientation concerning time and space, and loss of specific cognitive skills. Symptoms, on the other hand, are subjective. A person with an easily observed sign of such a rash might describe the rash as somewhat itchy or perhaps as very itchy. The rash is the sign, and itchiness is the symptom. Know the Signs and Symptoms of Dementia There are widely available charts, infographics, training slides, websites, and handouts about the "10 Signs" of Alzheimer's disease (AD) that are the focus of many explanations of Dementia. Unfortunately, for some, it's as if AD were the only cause of Dementia, and if you don't have one of the "10 Signs," you likely don't have Dementia. But that's far from factual. Many of the "signs" listed in these handouts are symptoms. In addition, listing only ten may shortchange those living with a different form of Dementia . Dementia is a syndrome, an umbrella under which AD exists, which includes many more causes of Dementia beyond AD. That's why the Dementia Society prefers to think about clues to Dementia initially. "Clues" are a combination of leading signs and early symptoms. They’re like little bits of "Hmmm, that's interesting." information that can generally be detected only when in close proximity and prolonged engagement with the person living with Dementia. Medical imaging, as well as post-mortem analysis of very small pieces of brain tissue, can reveal the signs of structural brain changes linked to the various types of Dementia. Symptoms associated with Dementia include forgetfulness and personality changes. Knowing and following the signs, symptoms, and clues of Dementia can help you anticipate and plan for the challenges you will likely experience. Progression and which clues appear first are often crucial to differentiating Alzheimer’s disease from other kinds of Dementia. People living with early-stage AD may experience gradual memory loss, increasing difficulty remembering newly learned information, and trouble completing complex tasks such as planning a family event. Yet, personality changes such as unexpected anger, increasing difficulty in finding the right words, unsteadiness on their feet, lack of inhibitions, and even hallucinations and delusions are often associated with other conditions and diseases that may cause Dementia. Some of the characteristics of mid-stage Dementia include the worsening of early-stage signs and symptoms as well as becoming restless, suspicious of others, and confrontational, as well as needing help with dressing and personal hygiene. At this stage, your loved one will need close supervision and assistance during the day and perhaps a caregiver during the night. By the time your loved one has entered late-stage Dementia, he or she may be unable to speak coherently, swallow without choking, or control their bladder or bowels. During this final stage, your loved one will need 24-hour care at home, in a Dementia care facility, or in hospice. Early-stage Dementia, when things are relatively calm, is an excellent time to research community resources, caregiver support, and the eventuality of full-time care —as your loved one transition from early to late-stage Dementia, knowing your options will make finding local services and assistance less stressful. The Dementia Society of America® offers many tools to learn more about recognizing the signs, symptoms, and clues, as well as care planning. Here’s a link to watch The Dementia Action Plan® , read The Big Umbrella™ , and further understand the 22 Clues™ . Disclaimer: Dementia Society of America (DSA) provides educational content only and does not offer medical advice. Always consult a qualified healthcare professional before making changes to your medical care. DSA content is created by both human and computer-generated means and is reviewed for accuracy; however, errors may occur. Views expressed by third-party contributors do not necessarily reflect those of DSA. Unless expressly stated, DSA does not endorse or guarantee any third-party products, services, organizations, or external content. All DSA content is copyrighted and/or trademarked and may not be used without written permission.

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