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- Dementia Clinical Trials
Consider joining a trial if you are living with a form of Dementia or wish to participate as a healthy control subject. Dementia Clinical Trials Clinical trials are an important feature of the commercial drug discovery and disease intervention process. Consider joining a trial if you are living with a form of Dementia and meet the trial's criteria, or if you wish to participate as a healthy control subject. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. The links below will open websites in a separate web browser page, so you can keep your place here. ClinicalTrials.gov- Clinical Drug Trials Database Comprehensive service of the U.S. National Institutes of Health. Dementia Clinical Trials for Healthy Volunteers in the U.S. This PDF file was compiled from the ClinicalTrials.gov website on September 18th, 2017, to provide a useful tool to find over 90 trials currently recruiting healthy participants as control subjects. Please follow the links provided within the document to obtain more information on specific clinical trials. CenterWatch- Dementia Clinical Drug Trials Database Search to find trials in your area, and sign-up for email alerts. Antidote.me- Dementia Clinical Drug Trials Database Search trials that match your age, location, health need and more.
- Mexico | Sociedad Demencia
Bienvenida Español | Sociedad Demencia de América (DSA ) es el líder de voluntarios, la organización sin fines de lucro de todo demencia en los Estados Unidos. México ¡Bienvenida Español! Sociedad Demencia de América (DSA) es el líder de voluntarios, la organización sin fines de lucro de todo demencia en los Estados Unidos. Nuestra misión es elevar significativamente la conciencia para el espectro de condiciones conocidas colectivamente como la demencia . Poner a disposición no médico, fácil de entender los materiales de educación D emencia y recursos, y ofrecer programas de calidad de vida para los que viven con demencia y sus cuidadores. Por favor, póngase en contacto con nosotros para conocer más acerca de nosotros .
- TDAP Workshop | Dementia Society of America
Helping families facing Alzheimer's disease, Vascular Dementia, Lewy Body, FTD, MCI, and more through education, research, and life enrichment. Dementia Society of America Thank you for being a valued partner in our mission of awareness and education. Dementia Society of America 50 Bulk The Big Umbrella SKU# DSA50TBU1A Dementia Society of America ® is a federally registered trademark. Dementia Society of America Advocate Partner Box SKU# DSAAPB1A Dementia Society of America ® is a federally registered trademark. The information below is for the TDAP Workshop Program Only for Authorized Advisors, Attorneys, and others with Preauthorized Access Order additional seminar handouts/materials; complete our contact form. Download the TDAP, 45-minute version, Workshop Participant Guide as an additional/optional handout, click here . Please click here to download materials for compliance review by your carrier/agency. D o not publicly distribute these P DFs. Consumer Direct Mail Optout (not DSA page) Page Updated 11/11/24 2:55pm ET
- Online Caregiver Training | Dementia Society of America
Find opportunities for free online courses and education about Dementia and caregiving. Online Training Important Notice: Dementia Society of America (DSA) does not provide medical advice. These courses are for informational purposes only; they are not intended as a substitute for professional medical advice. Always seek the advice of a qualified healthcare provider for any medical questions. Click below on the links to find free online Dementia caregiver training: Powerful Tools for Caregivers Powerful Tools for Caregivers gives you the skills to care for yourself while caring for someone else. You become a better caregiver by taking care of your health and well-being. Dementia Unplugged: Care Conversations Videos Created by the Dementia Society of America in partnership with Dementia Coach On-Call, this site offers several videos to help you care for someone living with Dementia, including driving, end-of-life, agitation, mealtimes, vacations, etc. UCLA Dementia Caregiver Videos Created by the University of California Los Angeles (UCLA), you will find many videos to help you care for someone living with Dementia, which includes bathing, taking meds, hallucinations, repetitive behaviors, etc. Johns Hopkins- Free Caregiver Training and Certification "Living with Dementia: Impact on Individuals, Caregivers, Communities, and Societies." Health professionals and students, family caregivers, friends of affected individuals, and others interested in learning about Dementia and quality care will benefit from completing the 5-week course at their School of Nursing. Don't see what you're looking for? Please contact us . Go back to Education | Click Here
- Mixed Dementia | Dementia Society of America®
Mixed vascular-degenerative Dementia is the most common cause of dementia in the elderly. Learn more about both common and more rare conditions. Contact us. Mixed Dementia "Autopsy studies looking at the brains of people who had Dementia suggest that a majority of those age 80 and older probably had 'Mixed Dementia ,' caused by processes related to both Alzheimer’s disease [or, other Dementia] and vascular disease. In fact, some studies indicate that mixed vascular-degenerative Dementia is the most common cause of dementia in the elderly. In a person with mixed Dementia, it may not be clear exactly how many of a person’s symptoms are due to Alzheimer’s or another type of Dementia . In one study, about 40 percent of people who were thought to have Alzheimer’s were found after autopsy to also have some form of cerebrovascular disease. Several studies have found that many of the major risk factors for vascular disease also may be risk factors for Alzheimer’s disease. Researchers are still working to understand how underlying disease processes in Mixed Dementia influence each other. It is not clear, for example, if symptoms are likely to be worse when a person has brain changes reflecting multiple types of Dementia. Nor do we know if a person with multiple Dementias can benefit from treating one type, for example, when a person with Alzheimer’s disease controls high blood pressure and other vascular disease risk factors." Source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- The Cognitive Action Plan Workshop | Dementia Society of America
Join the Cognitive Action Plan Workshop by the Dementia Society of America. Equip yourself with tools to manage dementia, promoting cognitive health & wellness. The Cognitive Action Plan ® Educational learning experiences with factual, easy-to-understand concepts, and accessible information. DONATE Live (In-Person or Virtual) Presentation : Led by the Dementia Society of America's founder and nationally recognized spokesperson, Kevin Jameson, this approximately 1-hour presentation will take you through the top 10 lifestyle modifications that have been thought to be among the most likely building blocks of better brain health. By citing international science-based studies, Kevin details the positive steps you can easily take to increase the likelihood of mitigating the effects of aging, disease, and decades-old lifestyle choices. We are all at risk for neurocognitive disorders because we have a brain, making this talk incredibly life-changing. Mr. Jameson brings nearly 40 years of professional on-stage experience, emotion, and skill to this lively, uplifting talk. You walk out feeling empowered to make a difference in your own life and the lives of those around you. Please contact us to request The Cognitive Action Plan ® as a live talk (in-person or virtual) at your next event. Go back to Education | Click Here
- Leadership Circle | Dementia Society of America®
Join the Dementia Society of America’s Leadership Circle to expand awareness of dementia and Alzheimer’s, creating a brighter future for those affected. Leadership Circle Leadership is Action. Leadership is a Big Vision. Leadership is a Perspective. Leadership is a set of Principles. Dementia Society of America's Leadership Circle brings like-minds together to make a meaningful difference! The only way to do that is to invest in the future, a new world! A world of love and care that is person-centered, a world that is built upon the notion that at some point, the only thing that really matters is quality, not quantity, of life. Click here to learn about the meaning of the Leadership Circle logo. 10 Leadership Circle Principles We are all connected in the circle of life; We are considered alive inside, even if our ability to outwardly communicate is hampered by Dementia or other conditions; I/we wish to touch with love, think with the heart, feel with the mind, and express appreciation with a simple smile; I/we seek to understand all Dementias as much as possible; I/we seek to prevent all Dementias with a holistic approach; I/we desire to detect and prevent cognitive impairment early; I/we treat others with a person-centered care approach; I/we want personal end-of-life choices to be respected by family, friends, and healthcare professionals; I/we speak openly and with compassion about all people, and about all forms of Dementia; I/we create the best possible tomorrow by taking the most meaningful actions today! CLICK HERE TO ASK ABOUT JOINING Annual individual/family contributors are Supporters. Annual corporate contributors are Sponsors. Annual Leadership Circle Levels are: BRONZE $1,000+ SILVER $2,500+ GOLD $5,000+ PLATINUM $10,000+ By joining with us and becoming an on-going Leadership Circle Supporter or Sponsor , you will demonstrate an eagerness and earnestness to provide: Dementia education for all; great quality-of-life programs for all; recognition to wonderful caregivers and care partners; accolades upon innovators and innovations that assist with personal Activities of Daily Living (ADLs), Dementia care management, and enhanced cognitive health. At every level you will receive a beautiful Leadership Circle recognition certificate (personally signed by the DSA president), that you can display to show your support. We may also like to recognize you publicly, unless you specifically tell us in writing that you would like to remain anonymous . Please learn more by clicking here . CLICK HERE TO ASK ABOUT JOINING
- Corticobasal Degeneration | Dementia Society of America
Corticobasal Degeneration (CBD) and Progressive Supranuclear Palsy (PSP) are Parkinson’s-plus syndromes that share some symptoms of Parkinson’s disease. Corticobasal Degeneration Corticobasal Degeneration (CBD) and progressive supranuclear palsy (PSP) are Parkinson’s-plus syndromes, meaning that they are diseases that share some of the symptoms of Parkinson's Disease such as slowing of movements, stiffness, tremors, falls, and shuffling of the feet. They may both also cause changes in memory and thinking. People with PSP also develop problems moving their eyes, called supranuclear palsy, a wide-eyed appearance, and difficulty swallowing. Unlike Parkinson’s disease, people often fall backward instead of forward. They may also develop severe stiffness in the neck. There are several variations on the name of CBD, such as corticobasal syndrome or disease and corticobasal ganglionic degeneration. It is named after the parts of the brain that are damaged: the cortex (the outer part of the brain) and the basal ganglia (deep within the brain). Like Parkinson’s disease, slowing of movements, stiffness, tremors, falls and shuffling of the feet are seen. Problems with movements occur on one side of the body, such as stiffness, shaking, or loss of control. People with CBD may be unable to get their arms to do what they want even if they have the know-how. Sometimes, the arm on that side might move on its own, called alien limb syndrome. More information from the source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Progressive Supranuclear Palsy
People with PSP may develop eye movement problems (supranuclear palsy), a wide-eyed appearance, and difficulty swallowing. To learn more, contact us. Progressive Supranuclear Palsy Corticobasal Degeneration (CBD) and progressive supranuclear palsy (PSP) are Parkinson's-plus syndromes, meaning that they are diseases that share some of the symptoms of Parkinson's Disease, such as slowing of movements, stiffness, tremors, falls, and shuffling of the feet. They may both also cause changes in memory and thinking. People with PSP also develop problems moving their eyes, called supranuclear palsy, a wide-eyed appearance, and difficulty swallowing. Unlike Parkinson's disease, people often fall backward instead of forward. They may also develop severe stiffness in the neck. There are several variations in the name of CBD, such as corticobasal syndrome or disease and corticobasal ganglionic degeneration. It is named after the damaged parts of the brain: the cortex (the outer part of the brain) and the basal ganglia (deep within the brain). Like Parkinson's disease, movement slowing, stiffness, tremors, falls, and shuffling of the feet are seen. Movement problems occur on one side of the body, such as stiffness, shaking, or loss of control. People with CBD may be unable to get their arms to do what they want, even if they know how. Sometimes, the arm on that side might move independently, which is called alien limb syndrome. For more information from the source: click here . Click below on the various terms to learn more about both common and more rare conditions, syndromes and diseases, that can cause, or include symptoms leading to Dementia: Dementia-Like Conditions (that may be reversible); Mild Cognitive Impairment (MCI); Alzheimer's Disease (AD or ALZ) Dementia; Mixed Dementia; Vascular Dementia; Young Onset Dementia; Lewy Body Dementia (LBD); Frontotemporal Dementia (FTD); AIDS Dementia Complex (ADC); Huntington's Disease with Dementia; Multiple Sclerosis (MS) with Dementia; Parkinson's Disease (PD) with Dementia; Chronic Traumatic Brain Injury (CTE) Dementia; Traumatic Brain Injury (TBI) with Dementia; Down Syndrome with Dementia; Posterior Cortical Atrophy (PCA); Primary Progressive Aphasia (PPA); Wernicke-Korsakoff Syndrome (WKS) Dementia; Limbic-predominant Age-related TDP-43 Encephalopathy (LATE);*** Creutzfeldt-Jakob Disease (CJD) Dementia; Corticobasal Degeneration (CBD); Progressive Supranuclear Palsy (PSP); CADASIL;*** Sanfilippo Syndrome*** Batten Disease (Childhood Dementia);*** Binswanger Disease.*** Cerebral Amyloid Angiopathy (CAA)*** Various Childhood Dementias*** Adult-Onset Leukoencephalopathy*** Don't see what you're looking for? Please contact us. *** Takes you to a non-DSA website. Go back to Definitions | Click Here
- Bequests & Memorials | Dementia Society of America®
Make a bequest, memorial, or other legacy contribution to support the mission of the Dementia Society of America Dementia Bequests, Donations & Memorials Thank you for considering supporting the Dementia Society of America. With your Dementia donation, bequest, or memorial, you take an active role in becoming part of the solution. Your generous contributions help us further our mission to enhance the lives of people living with Dementia, their caregivers, and the community. DONATE As an IRS-registered national 501(c)(3) nonprofit organization, headquartered just outside Philadelphia, Pennsylvania, your Dementia donation, bequest, or memorial qualifies as a tax-deductible contribution. No matter where you live if Dementia has touched you or someone you know, consider giving today. Dementia Bequests If you’d like to leave a meaningful legacy, consider remembering the Dementia Society of America in your will or trust. During the estate planning process, you may designate a specific dollar amount, asset, property, or percentage of your estate assets in your will to help us further our mission of helping people living with Dementia and their caregivers. The following is a sample bequest language for your will or trust that you can customize to suit your desired bequest: “I give and bequeath to the Dementia Society of America, Doylestown, Pennsylvania, the sum of $__________ (or specific asset or ________ percent of the remainder of my estate) to be used for its general charitable purposes.” Contact the Society at 1-800-DEMENTIA (800-336-3684) if you have further questions about making a bequest—press option #3. Mail or checks that need to go to a physical address (not our PO Box), may be sent to our national headquarters: Dementia Society of America 188 N Main Street Doylestown, PA 18901 Download a Declaration of Bequest Intention form here . YOUR GIFT CHANGES LIVES. Donate Online Donate Stock Donate by Check Dementia Donations As a donor, you can help us advance understanding, therapies, and coping mechanisms for the leading forms of Dementia. We graciously accept: Alzheimer’s disease Dementia donations Vascular Dementia donations Lewy Body Dementia donations Chronic Traumatic Encephalopathy Dementia donations Frontotemporal Dementia donations Mixed Dementia donations Other Dementia donations There are many Dementia donation options available so that you can choose the method that’s right for you. Dementia Memorials If you wish to encourage donations to the Dementia Society of America in lieu of flowers to memorialize a loved one, please consider adding the following statement to the obituary: "In lieu of flowers, please make contributions in memory of _____________ to the Dementia Society of America by mail to PO Box 600, Doylestown, PA 18901, or online." In addition to an obituary published by the Funeral Director, you may choose to create a memorial page to remember the life of a loved one who battled Dementia. In partnership with Ancestry.com® and their We Remember ™ initiative, you can establish a We Remember memorial page online for no fee, and it will remain online without the need for renewal. Together, let’s help pay tribute to a life well-lived. Learn how to set up a Memorial Page for your loved one. Donate Online or Check Donate by Mail Make a Bequeath How Your Dementia Donations, Bequests, and Memorials Make a Difference No matter how big or small, every Dementia donation, bequest, and memorial counts. Choosing to give back is an honorable and rewarding way to show your support. We use these generous and noble contributions for: Dementia Awareness, Education, and connections to Local Resources to Help Individuals and Families in their Journey Life-Enrichment Music, Art, Movement & Touch/Sensory Programs to Benefit those Living with Dementia Recognizing Outstanding Carers, Innovators, and Researchers Education We believe in the value of knowledge as the first step toward understanding Dementia. Facts and information help raise awareness, decrease stigma, and offer coping strategies that can enhance one's quality of life. Through our global call-to-action, Know Dementia®, we aim to help every individual and employer in the U.S. understand the facts about Dementia. Recognition of exemplary people and organizations Our non-medical and easy-to-understand Dementia awareness resources and programs are geared for individuals, small and large companies, civic organizations, and the community. We develop monthly quality-of-life programs for continuing care communities and Dementia-friendly forums to highlight promising and meaningful therapies for people living with Dementia and their caregivers. Some people living with Dementia may long to hear music, express their feelings, feel the touch of a warm and loving hand, or watch graceful swaying and swinging dancers (and join in, if able). Underwritten by generous supporters like you from across the country, our Ginny Gives Grants programs provide life-enhancing opportunities for people living with Dementia to connect through art, music, dance, sensory stimulation, and other modalities. Your Dementia donations, bequests, and memorials help us provide quality-of-life programs designed for nursing homes, continuing care residential communities, and other Dementia communities. Our uniquely designed programs include: Art programs – Experiencing and interacting with art through creations, traveling art exhibits, or museum visits (as one is able) shares comforting artful energy, which is a remarkable gift. Music programs – Whether it’s a small group gathered around an instrument, a violin serenade, or barbershop quartet, beloved music and song can reach people deeply. Dance programs – With comfort and safety in mind, movement – however small – is often a powerful therapy for enhancing the sense of well-being and security. Sensory stimulation programs – Holding hands, a gentle shoulder rub, feeling smooth silk, or smelling the warm cinnamon are just some sensory experiences that can instill a sense of calm. These are just some of the examples of programs that your contributions help us provide. Reach out to learn more about the ways we’re helping people living with Dementia and their caregivers. Donate Online or Check Donate by Mail Make a Bequeath Resources and Programs People providing exceptional caregiving, counseling, engagement, and nutritional support deserve to be recognized for their valiant efforts to enhance the quality of life for people living with Dementia. We also honor companies working toward developing prevention initiatives and creating innovative products, services, and solutions. Your Dementia donations, bequests, and memorials help promote the following recognition efforts: Dementia Carer® Award – Recognizes exceptional heartfelt and compassionate caregiving Dementia SMART® Award – Recognizes organizations that develop assistive innovations and solutions for people living with Dementia Dementia QUEST® Award – Recognizes research that contributes to furthering medical understanding of Dementia, including possible cures, causes, and interventions Meaningful therapies – Recognizes those offering therapies centered on visual and audible arts, dance and movement, and touch and sensory stimulation to people living with Dementia or their caregivers As the nation’s leading volunteer-driven, all-Dementias awareness organization, we appreciate your support as we work to assist people living with Dementia and their families and caretakers. When we come together to make a difference, we can enhance many peoples’ lives. If you share a passion for making change happen, please join us in our mission. Please contact us today to learn more about Dementia donations, bequests, and memorials. Donate Online or Check Donate by Mail Make a Bequeath
- Care Education | Dementia Society of America®
Learn about self-care or being a Dementia care partner. Seek advice from a qualified physician or health care professional about any medical concern. Care Education The perfect place to start. Learn about self-care or being a Dementia care partner. Important Notice: Dementia Society of America (DSA) does not provide medical advice. The contents are for informational purposes only and are not intended to substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified physician or health care professional about any medical concern. Do not disregard professional medical advice because of anything you may read, see or hear on this website, or contained within any of our communications, whether electronic or otherwise. The views of individuals quoted on this site and elsewhere, are not necessarily those of the DSA. With this said, we hope that the Dementia information we present on this site, including our programs, offers answers and approaches that can be used to enrich the lives of those living with the syndrome, their caregivers, and the community at large. Explore Dementia Care In-Depth | Click Below | FAQs Our frequently asked questions about Dementia. Health Information Links Find Dementia clinical trials , and more. Dementia Definitions Learn about 10+ leading forms of Dementia. Discover Helpful Technology Find Mobile Apps, Products and Services. Caregiver Training Online Training The Dementia Action Plan™ In-Person Presentations Videos & Publications Read our newsletter, and watch our videos. Web Directories Find Dementia homecare, doctors, and more. Collaborators Other organizations around the globe. Books, Movies, Music & More Fiction, Non-Fiction and Creative Expressions Dementia | Brain Health Blog Dementia | Brain Health Blog Online Blog Posts The Cognitive Action Plan™ In-Person Presentations
- Partnerships | Sponsorships
The Dementia Society is looking for partners! Learn more about our partnerships and how you can join our mission to help those affected by Dementia. From research opportunities to fundraising, we are committed to creating a world with better care and understanding. Partnerships Clicking image will take you to a third-party website. Aging Life Care Association National Corporate Partner We Remember by Ancestry.com National Corporate Partner Mansbach Health Tools National Corporate Partner




