Dementia Society Helps Answer Your Questions

Who ARE we? At the Dementia Society of America®, our mission is to provide HOPE through Dementia AWARENESS and education, fund RESEARCH, and recognize ENGAGEMENT programming focused on powerful therapies such as art, music, movement, touch, and more.

We also help individuals, families, care partners, and communities better understand Dementia and navigate the journey with trusted caregiver tools and meaningful care partner support.

Dementia Society of America is your volunteer-driven 501(c)(3) nonprofit charity serving the nation for all potential causes of Dementia, including:

Alzheimer's (AD), late & young-onset
Vascular Dementia
Mixed Dementia
Lewy Body Dementia (LBD)
Frontotemporal Dementia (FTD)
CTE, TBI, HIV, L.A.T.E., and many other causes.

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Looking for Basic Dementia Information?

You've come to the right place.

Dementia Society of America® is a Voluntary Health Organization dedicated to helping people better understand Dementia in all its forms, sometimes referred to medically as Major Neurocognitive Disorders.

We've brought together trusted information and helpful resources from across the country and around the world—making it easier to find the guidance you need in one place.

Think of us as a Dementia care information center, educational resource, and Brain Health resource—all working together to bring greater understanding and HOPE.

Whether you're living with Dementia, supporting someone who is, caring for a family member or friend, or simply looking to learn more, Dementia Society of America is here for everyone.

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Knowledge Brings Hope

Millions of Americans are living with some form of Dementia today.*

Behind every number is a person—a family member, friend, neighbor, colleague, or care partner. Dementia can affect nearly every part of life, but greater understanding can make the journey less confusing and isolating.

At Dementia Society of America®, we share education, resources, and programs that bring HOPE to individuals, families, care partners, organizations, and communities.

Dementia Is More Than Alzheimer's

Dementia is not a single disease. It is "The Big Umbrella," a term used to describe symptoms that can be caused by many different diseases, disorders, and conditions.

In fact, the latest research suggests that some people who received an Alzheimer-type Dementia diagnosis in past decades may have had Dementia caused by another underlying disease or disorder.**

Understanding that distinction matters. It highlights the importance of early screening, appropriate evaluation and testing, and greater awareness of the many possible causes of cognitive impairment and Dementia.

The Impact Is Enormous

Dementia affects millions of people and carries high emotional, physical, and financial costs. Dementia-related deaths are considerable in the United States,*** while the cost of care totals billions of dollars.****

But statistics tell only part of the story. Families and care partners may face stress, exhaustion, uncertainty, and difficult decisions while supporting someone they care about. Professional caregivers can experience burnout as well. Dementia is costly in ways that cannot always be measured in dollars.

Living with Dementia

While cures remain unavailable for many causes of progressive Dementia, a diagnosis does not erase the person.

People living with Dementia can continue to experience meaning, connection, purpose, joy, and dignity, and we recognize those working to advance non-medical therapies through our Ginny Gives® Awards. Care partners can also find fulfillment, strength, and meaningful moments along the way—even when caregiving is difficult. That is why education, compassionate support, and practical resources matter.

Every Person Deserves Dignity

We believe in person-centered care and, whenever possible, person-directed care. That means recognizing each person as an individual—with their own history, preferences, abilities, relationships, and needs—and treating them with respect and dignity throughout their life.

Our goal is simple: to help create the best possible quality of life today and more hopeful tomorrows. In fact, you can even watch the TV-style program: The Dementia Action Plan® to learn even more.

Through greater Dementia awareness, education, and support, we can replace confusion with understanding, isolation with connection, and fear with HOPE.