Learning experiences with factual, easy-to-understand concepts, and accessible information.
With the diagnosis of Dementia by a physician comes many questions, fear, and the search for reliable, accurate information about these conditions.
Our organization has as part of its mission, the dissemination of such information. We want everyone from the general public, to those living with these symptoms, to the care partners, to be able make sense of what Dementia is and isn't. Once we understand what it is, we can all work together to make life better for patients, families and caregivers. Please refer to the resources on this page, and do not hesitate to contact us.
KNOW DEMENTIA®, our global call-to-action vision, provides the platform for learning experiences with factual, easy-to-understand concepts, and accessible information about the many diseases and conditions that fall under the Dementia symptoms umbrella; the advanced planning that everyone should consider; the key steps to take now, and the trajectory of care that might be needed.
One of our primary messages is that, although Alzheimer's Disease (AD) often dominates the Dementia conversation, a 100% conclusive Alzheimer's diagnosis is still only obtained postmortem with an examination of the brain tissue. That said, very recent developments in positron emission tomography (PET) scanning have allowed the misfolding amyloid beta-protein (one of the two hallmark pathological indicators required to call it Alzheimer's Disease, the other being misfolding tao proteins) to be better visualized in the living brain and that, in turn, may lead to a higher degree of certainty regarding an AD diagnosis.
Because of these advances in imaging technology (today, mainly serving clinical trials of the major drug companies), researchers believe that upwards of 35% (more than 1 out of 3 people) of those given an AD diagnosis, may not have Alzheimer's and instead have some other disease(s) or causes creating the conditions we collectively call Dementia.
Critically, there are many other conditions and causes for the symptoms of Dementia (or even mimic it), therefore, it's important not to: self-diagnose, assume a diagnosis, ignore symptoms, or treat Dementia without professional medical advice.
We offer workshops, talks and presentations aimed at educating the general public, businesses and government leaders, and professionals in all fields, about the many forms of Dementia. Dementia Society of America (DSA) is an all-volunteer nonprofit organization, we have no brick and mortar overhead, and we speak for free (and donations help defray our travel expenses). Please contact us to schedule a presentation for your organization or group.
Please download one example of our informative material for free: "MEMORY ISSUES? 7 ACTIONS TO TAKE NOW!" Adobe Acrobat Reader is required. You may also request one or more, be sent to you for your organization, office, store, or for use at an educational event. Please contact us.
Together, let's Cure Taboo, Stigma, Apathy™!